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    • Hello everyone, I have been on this forum from time to time, and I must admit usually when I was feeling hopeless about the process, or angry.  Hopefully I am not putting this post in the wrong place also.  Unfortunately, it's been a long time since I got on the forum, and totally forgot my login and password.  I got a new one, and here I am.  I wanted to post to give other veterans fighting this difficult process some hope.  I started in June 2008 to get rated, after my second neck fusion surgery.  The surgery went bad, and left me with permanent nerve damage down my left arm and hand, and permanent pain and fatigue in my neck and shoulders.  It got so debilitating that I ended up having to retire on disability from a great civil service career as a GS15, doing what I loved.  My problem was that I chose not to take the VA exam when I was retiring from the Army, because I felt like I was in better shape when I retired than when I enlisted.  If I could offer any advice to those active duty Service Members who are getting ready to retire, go to that VA exam.  Do not ignore it, as I did.  So I was initially rated at 40% back in 2008 and received an increase to 60% in 2009.  Eventually with the help of an Independent Medical Opinion, I was able to get to 90%, which was reduced to 70% for no reason or medical change, and then raised again on a DRO appeal back to 90%.  All the while my spine was beginning to show the wear and tear of having jumped out of airplanes.  While the pain in my neck and arm was diagnosed as CRPS by a Navy pain management doctor, and substantiated by an army doctor I was assigned to after the first one PCSed.  I must point out here that I am very lucky, because I live in the Metro Washington DC and I was enrolled into the Military Health system, and in a local Army off-site clinic feeding into Ft. Belvoir and Walter Reed hospitals, so all the while I was getting good health care.  As I mentioned, I had to retire on disability from the civil service much too quickly, it was in part because the CRPS had spread into my left and right extremities. It was so bad that in Sept 2012, that it caused me to fall and crush my right foot and severely sprain my left ankle.  It took me nearly a year to get over the initial surgeries, and after three surgeries I can at least walk.  SO I applied yet again for an increase.  Along the way, my lower back was rated at 20%, and while it was worsening over the arc of my story, I was getting no support from the VA, as I was fighting back in forth with the VA to keep and/or restore the 90%.  This past summer my back had deteriorated to the point that I could barely walk.  I saw the spine surgeon at the Ft. Belvoir Community Hospital last July. Ironically, after I asked my orthopedic surgeon who was still following my aftercare post foot surgery #3, which she performed in January of 2015, to look at my back, because of the pain I was in.  I told her that I had prior x-rays taken where the radiologist report stated that all I had was some age related degenerative disk disease, but that the pain I was experiencing was much more than a little arthritis.   She ordered new x-rays and after reviewing she said that I had a right to be in so much pain.  From her point of view my back was in such bad shape that she wanted to refer me to the spine surgeon.  So I saw him and discussed that x-ray.  In his opinion I had serious instability at 6 levels, and scoliosis (which had been diagnosed while I was still active duty) in the lumbar area, and desiccated disks up and down that segment.  He ordered an MRI and a Myelogram of my lower back and both tests confirmed his concern.  So I had surgery to fuse my back from T12 to L5 last October, which my surgeon characterized as one of the most stressful surgeries for a human body.  It was also obvious that I my back was not normal, and clearly it had all come because of active duty service.  Still I didn't get an increase until I changed my VSO from the American Legion to the Disabled American Vets.  I met my new Service Rep in early December last year, after I received a letter from the VA once again proposing to reduce my rating yet again. By the time I saw the VSO, it was obvious that there were major changes in my lower back, and not only did I not deserve a reduction in my 90% rating, he felt very strongly that I had cause to get bumped up to 100%.  So he submitted for TDIU, because I was still just into my recovery from the back fusion surgery, and that it didn't look to him that I would ever improve; and an increase to 100% post-op recovery.  Luckily the VA finally agreed with something pertaining to my health, without a year's long back and forth battle.  I was asked to come into the Washington VA hospital for another P&C in April of this year.  I also ended up going back for a second exam a few months later.  Both examiners were sympathetic to my plight.  And here I would recommend anyone requiring a P&C exam that if you are sent to a QTC contractor exam (or a different company performing P&C exams) to try and get the exam switched to a government facility, even if it takes a little longer.  Every time I was examined (and I use that word lightly) by QTC, it ended up in either an actual reduction in my disability rating, or a proposed one that I had to fight off.  Finally, in July, I returned home from my second lower back fusion surgery and hospitalization to find that big brown envelop that we're all familiar with.  I had to have this second fusion, because the first one refused to fuse into my sacrum.  So the surgeon had to remove the L4-L5, L5-S1 screws, and re-anchor the L4-L5 screws and extend the rods down to my pelvis, where he had to add 5 inch screws in each side of my pelvis to anchor the entire fusion.  Back to the envelop.  I opened it to find a new rating.  Finally, I was awarded 100% Permanent and Total starting in April, with a 5 months of TDIU during my immediate recovery from the 1st lumbar operation.  So now after fighting for 8 years, I am finally rated at 100%.  In my mind, I should have been awarded that years ago.  Here is where I tell all of you to never give up.  There have been times when opening those envelopes that I was disconsolate and angry, but I never gave up.  I have had assistance in tough times to get my journey on track, and I am so grateful to the DAV for taking my case and following it through to completion.  Pick your VSO carefully.  My first stab at this was with the American Legion.  Initially, I had success with the officer assigned to my case, but once she retired, I received no useful support, and the VSO assigned to me was as a ghost, never returning my calls.  So for years I was left to work my case alone.  It was only after the DAV started helping me did I see any increase.  So this is my story.  I appreciate those who have read it through to the end. TCK  
    • Is there actually a regulation that says the NOD requires "NEW" evidence? Or is it just something the VA made up to make veterans give up early?   Either way, was the OP actually diagnosed with PTSD by a MD?  I didn't see him say that he was.
    • Mike Hunt,
      That is good info, but getting the truth out through the media helps to stir up additional interest from the people. Get them interested and involved could mean a much greater response to the Congressional reps.   Keli,
      This might not be Houston specific, but might be helpful about C&P exams for claims. When a veteran has a C&P exam for a claim where range of motion (ROM) is involved, the C&P examiner is required to use a goinometer (like a protractor) to measure the movement. Like many other veterans, I have had exams where they simply failed to use this device. If you ask the examiner, "Say, aren't you supposed to be using a goinometer?" many examiners might take it as an insult and say "I have been doing this long enough and do not need to use one". They proceed to 'eyeball' it. I actually had a C&P exam here in Birmingham from a neurologist. He refused to use the goinometer, performed the exam with one hand while eating a submarine sandwich in the other. Why is this important? Because a 1 degree difference in the ROM measurement could mean the difference between being evaluated accurately vs. receiving a low-ball rating. Additionally, there are painful motion/functional loss factors, which are equally important. Let's say you can bend all the way (max ROM), but pain kicks in at a certain point (limited ROM). Some examiners will wrongly use the max ROM, but should instead be using the limited ROM. Another instance where the veteran may be given an inaccurate low-ball rating.     In addition, nexus statements are a major source of heartburn for veterans. A nexus statement is required for service connection in most cases, except presumptives. The VA tries to limit these to being performed only be C&P examiners because they claim they require special training and have access to things like the claims file. This means that a veteran might have everything they need to win a SC claim, but are put through VA red tape to get that one critical element. In some situations, this may be best, but it is possible for other VA doctors to do this. For example, if the veteran is already SC for something and it causes secondary disabilities.  
    • My first 2 C&P examiners were very kind & polite & was very happy with the accuracy of my records from them. There are a lot of VA employees that are vets or have family that served. By the way, there were a few times that I've run into grumpy VA workers & then came to find out that they are also Vets with mental issues such as mine.  ...but the VA still has more a-holes per capita than any other hospital I've been to.
    • Good luck Buck! I hope you get good news!





john999

Emg

10 posts in this topic

I had an EMG today because my feet hurt so much. The VA said there was no nerve damage in my feet or pinched nerves. So I guess I am cured. Can you have peripheral neuropathy and yet not show any damage on an EMG? I have miserable pain in my feet and sometimes lose my balance, but VA now says my nerves are fine. Feelings of numbness,pain and tingling are not totally objective. I worry the VA will decide I do not have diabetic neuropathy and cut off my pain meds. I have been for a lot of tests this last two weeks and my subjective pain is not really reflected in my objective findings from MRI and EMG, but I still have miserable pain in my feet and back. I get sick of doctors telling me that my findings are normal and, yet, I hurt, and the VA does not adequately treat my pain. I don't believe that these pain doctors know what they are doing, and just want big bucks to do procedures like nerve blocks that may or may not work.

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I have some of your symptoms and mine are partially related to my herniated disc's in my back. The compression of the bulging discs press on the nerves and thereby results in numbness, pain, tingling, falls related to not being able to feel the extremity and possibly some footdrop also. Coldness to extremity, color changes (bluish related to poor circulation), edema (swelling) espec. if dependent (hanging down lower, or sitting in chair and feet down on floor), loss of balance, burning sensations, etc

Do you have back trouble? Did yout MRI show any cervical, or lumbar back degeneration?

Nerve block 4 weeks ago and pain worse. Had them in past without any success, hoped for improvement, but notta. What about fibromyalgia also...where else is all your pain? Trigger points with fibro yet many people have probs with feet too. I think sometimes peripheral neuropathy can be evident without examination, testing confirmation, ie(EMG), that is just my opinion. There are some nerves that have neural impulse synaspes that misfire, esp if compression of nerves.

OTC meds don't touch the pain. Hydrocod. or fentanyl patches may help to manage it but not always and not a cure. Then you have to worry about the s/e of meds esp. with the other meds you take...esp watch for antidepressants with pain meds.

I had an EMG today because my feet hurt so much. The VA said there was no nerve damage in my feet or pinched nerves. So I guess I am cured. Can you have peripheral neuropathy and yet not show any damage on an EMG? I have miserable pain in my feet and sometimes lose my balance, but VA now says my nerves are fine. Feelings of numbness,pain and tingling are not totally objective. I worry the VA will decide I do not have diabetic neuropathy and cut off my pain meds. I have been for a lot of tests this last two weeks and my subjective pain is not really reflected in my objective findings from MRI and EMG, but I still have miserable pain in my feet and back. I get sick of doctors telling me that my findings are normal and, yet, I hurt, and the VA does not adequately treat my pain. I don't believe that these pain doctors know what they are doing, and just want big bucks to do procedures like nerve blocks that may or may not work.

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I can sympathize with you. My feet hurt a lot and they said I have plantar fascitis but I have more pain than just plantar fascitis.

I've had the EMG's too, and I think the nerves can be damaged but not damaged and/or compressed enough to show up on EMG. Unfortunately if it doesn't show up on a test, most doctors say there is nothing there and sometimes seem to take satisfaction from that fact. :rolleyes:

Have you talked to the podiatrist?

Susie

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I have back pain and I have talked to a podiatrist. I have tried almost everything and still have pain. My foot pain started first and then as I got more immobile my back started to hurt. I have arthritus in my back and some bulging discs. When I first get up in the morning my back is stiff and sore. If I sit too long I get sore in my back and it gets stiff. I am constantly getting up and streching my back and hamstrings. The percoset I take does not give me much relief. My feet are beyond hope. Once the pain cycle gets cranked up it is hard to stop.

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John,

I would recommend you have them check you for RSD (Reflex sympathetic distrophy); another name for this is CRPS (Complex regional pain syndrome).

My spouse was diagnosed with this condition (RSD) from a botched bunion surgery.

From what her pain specialist tells us, many doctors are not familiar with this condition or don't know how to diagnose it and will say that the "pain is in the patient's head" or something like that.

I wish you the best. :rolleyes:

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John999, I feel for you and know where you are coming from. I have the lower extremeities neuropathy and severe knee pain due ot osteoarthritis/DJD, but none of my subjective tests are indicative to the pain and weekness I suffer. I do however have a secondary disease process called Sacoidosis, a autoimmune disease similiar to Lupus. It causes constant iritation and swelling in the connective tissue and nerves of just about every joint in my body except my spine. That is another story in itself.

Anyway, they won't come right out and say anything possitive as to what is the source of my extreme pain, but since physical exams show varifiable weekness, they have given me a scooter to use when I have to remain on my feet for any amount of extended time. go figure.

I rate a cart, but they can't say the neuropathy is the cause, or the minor DJD disease is the cause, or the osteoarthritis is the cause, or if the Sacoidosis is the cause, or even if a combination of all of them is the cause. Non of these are SC or have any likelyhood of ever being SC, so why do they still hem and haw around it?

I too am on anti-inflamatoies, one is also for pain and take the Hydrocodone also. I'm suppose to take one tablet of it four times a day, but the pain is so great at night when I try to sleep, I double up and take two before bed time and again mid way through my night, just so I get enough sleep. I also take a sleep med and a psych med at bed time, otherwise I would get very little if any sleep until I drop from extreme exhaustion.

I wish you luck in you endevevors to manage your pain, I know how it is.

Rockhound Rider :rolleyes:

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