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      A remand is a good thing. You will also be able to submit more evidence so don't look at it as a bad thing.  My remand took almost a year to get rated and of course VA screwed that up too.
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      Every letter I to access on eBenefits has a message saying it is currently unavailable.
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      SSDI APPROVED First Time !!!!!!!!!!!!!     I put in for SSDI a month ago (05Apr?) and have been checking it everyday, of course.  Finally today, I see it said a decision has been made and that they will mail me the decision.  I just looked at the SSDI site in "payments" and it showed the Benefit Verification Letter:
      --You are entitled to monthly disability benefits.
      --Beginning June 2016, the full monthly Social Security benefit before any deductions is $x,xxx.40   Thank you everyone, for your help.  Now on to the next hill....IU    
    • 25 Year Long Service Connected Disability Denied After C/p Exam.
      No don't give up.  If you would read some of our back stories you would understand that we were in the same boat and some of us were even worst.  I had a VA supervisor review my file and tell me that I was never going to get any benefits because my military records didn't show I was having any problems.  Lo and behold after reading the 38 CFR part 3 and 4 and filing claims and getting a copy of my C-File, I found out that he lied straight to my face trying to get me to give up. I did have a good VSO who helped me out but he retired not long after telling me what to do and I have been fighting like most veterans.  The benefits are yours, you will have to continue to fight and not give up.  That is what VA wants you to do.  Don't give into their games. P. S. What are you service connected for 20% for? If it is for your knees you can always get medical opinions that your knee condition have caused you back condition and get that service connected to.  Just don't give up we are here to help
    • Fully Developed Claim question
      The problem with VSO's are that they are there to just move your claim forward and not have any knowledge or little knowledge. Im a Veterans Service Representative and I see it all the time where VSO will add more claims to your existing claims when it is a FDC claim instead of gathering all information in the beginning thus avoiding delay in your claim. Im sorry you are not aware of this and its not your fault but sometimes it happens this way. Rule of thumb always do a Intent to File first in order to preserve the effective date for pay. Example if you intent to file say 5/1/2015 and put in claim 4/1/2016, then you get rated on 12/1/2016, you will get paid back to 5/1/2015. Just FYI. Good luck.
    • Voc Rehab - Independent Living Services
      I know about the this link Sgt Cox.  Appreciate it.  But I'm looking for information from individuals who have already been or are going through this program.  Want to know what their experience is or was like.  Thanks again.  
    • 25 Year Long Service Connected Disability Denied After C/p Exam.
      Back in 1991  The 20%  comp rate was around 153/157 monthly.     Report post  
    • 25 Year Long Service Connected Disability Denied After C/p Exam.
      You are 100% as I did not follow up with my claim in 1991. I only had on my the way the guy set there and just laughed at me for wanting to file on a 20% Claim in 1991. Which if I remember correctly it was only around $50-$70 a month. He thought it was funny and told me it would take 10 years to pay it back ( severance pay ). So yes it is absolutely my fault for not following up early than 1999 when i felt it should of paid off the severance pay. In all things I would like for them to go back to 1991 when I was discharged but I know it will not happen. Shoot I am having enough trouble getting it now from 1999 forward. So yes I know in my heart that if at the most it is only going to go back to 1999. That is the original claim for compensation and yes the Claim went in and 10 days later it was denied saying although there was a service connected disability for which I was discharged for, there is no current disability. I requested a examination as at the time I was going to a couple of doctors. But I asked them to get assist in getting the medical records which they did not do. Already went through my C-file and have nothing. Even asked the RO about it and he told no they did not have to assist me at all. I even sent them Codes that showed they even without the medical evidence they had to accept my lay statement and all I had to prove was there was painful motion. Well one month after the RO denied the claim I went to VA hospital where they took X-rays and the examiner stated there was swelling and effusion and that it needed to be checked and seen if it was connected to service. Nothing was ever done about it. Now both examiners claim that has never been any swelling or effusion. No ankylosis or any kind of problems related to my knee's. I ask myself how can they set there read the report and still claim there has never been any thing wrong with me. And that is even after looking at the medical records and seeing the photos the doctor took during the arthroscopic knee surgery in 2009. But they insist that my knee has ever bothered me to any extent that it limited the motion of my knee's. I just feel and know that no matter what I bring into the evidence they will not accept it. And if they do it will be like the FCA ( Functional Capacity Assessment ) Test that was done it 1996 where they stated that I had trouble squatting,standing,kneeling, and a prominent limp on one side. All of which affected my healing of my lower back and caused it to actually heal in the wrong way. And now it has caused a whole spine to start buldging disc from bottom to top.  That is not including all the other conditions I filed for. Just like Abestosis from when I was on the LSD Spiegel Grove not once but twice was on it for almost 10 days. And lived in it during Hurricane Hugo which hit South and North Carolina in 1988. We were returning from Puerto Rico when it hit and had to lay over in Miami til it cleared the coast. But we were held in our quarters during that time.So yes we were not only exposed but had to stay in it and breathe it 24 hours a day.   

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dottiek

Desert Storm "baby" Syndrome?

14 posts in this topic

I just found this site, after several years of frustration. I'm hoping someone out there has some common ground here. My husband served with 2ACR in 1991. Our son was born 10 months after his arrival home. He's now 17. As a baby, he seemed to have strange "seizures" that were never diagnosed, and lung problems. About age 3, he "outgrew" it all, but I recall seeing then in the Stars and Stripes an article about possible problems with DS kids, esp. their lungs and 'strange neurological problems'. Of course, I cannot find it now.

About age 13, he started to have problems with pain in his legs. Doctors first passed it off as "growing pains"; soon after it developed into sudden weakness--he would just be walking down the hall at school, home, anywhere, and suddenly fall down, his legs too weak to hold him up. He endured years of poking, prodding, million dollar workups--no diagnosis. EEGs "normal"; muscle studies "normal". Blood tests normal. Once again, the problem seemed to let up, gave him some peace. He kept his canes around just in case though.

Twice this fall he has been hauled off the field at his school (he's in the marching band) because his legs stopped working again. In my gut, I think it's DWS but no one will even take me seriously when I mention it.

My husband died when he was almost 4 in a car accident, leaving me with him and his 5 siblings to raise. I have no idea what condition he'd be in now if he were alive, but a close friend in the same unit who was with him there developed schizophrenia at age 48 (normally onset for such a thing is in late teens/early 20s). He's 100% disabled. Does anyone have anything similar to report? Are there any studies of family members born after the war being done?

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hi,let me start by saying im so sorry to hear about your husband and also your son.

i am also a desert storm veteran. who suffers from gws(gulf war syndrome)

my 11 yr old son has had pain in his legs since hes been little. hes been on naproxen for yrs.

they said the same thing it was growing pains.

hes been to every specialist also with no diagnosis??

he hasnt thank god lost his legs like your son.

he also suffers from extreme and frequent unexplained headaches ???

i wish the us govt would finally own up to what they did to us . so we can get treated for our ilness.

ill keep you and your family in our prayers.

tankerjoe0

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I'm also a GW1 veteran with GWI symptoms.

There are allot of poeple that feel GW veterans children are having allot of health problems. However, it has just been a bit over a year since Gulf War Illness has been declared an official illness among veterans and it is still not recognised by the VA. At this stage, the powers to be are still denying that GW veterans family members are having any more health problems than the rest of the population.

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I wonder what sorts of problems the OIF/IEF vets will have due to some environmental issue? It takes the VA years to actually make these diseases presumptive. Look at Agent Orange. They are still adding diseases 40 years later to the list. The only thing the VA admits regarding children of AO vets is spinabiffida(spelling?) The disease has to hit all the lights on the IOM pinball machine.

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Dottiek, I am sure you will be able to find help here for some of your difficulities experienced by you and your son. I am glad you joined this site. People here look out for one another, and if they don't know an answer, they will try and seek it all over.

Hope is offerred here too. Your husband serving during Desert Storm is something you and your family can be proud of, and we salute his service and you loss.

May you find assistance on your journey, answers to some questions, and people who appreciate vets and their families. :( halos2

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Heck, Viet Nam ended when ? ?

Just recently three more presumptive conditions

were just added on.

carlie

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I just found this site, after several years of frustration. I'm hoping someone out there has some common ground here. My husband served with 2ACR in 1991. Our son was born 10 months after his arrival home. He's now 17. As a baby, he seemed to have strange "seizures" that were never diagnosed, and lung problems. About age 3, he "outgrew" it all, but I recall seeing then in the Stars and Stripes an article about possible problems with DS kids, esp. their lungs and 'strange neurological problems'. Of course, I cannot find it now.

About age 13, he started to have problems with pain in his legs. Doctors first passed it off as "growing pains"; soon after it developed into sudden weakness--he would just be walking down the hall at school, home, anywhere, and suddenly fall down, his legs too weak to hold him up. He endured years of poking, prodding, million dollar workups--no diagnosis. EEGs "normal"; muscle studies "normal". Blood tests normal. Once again, the problem seemed to let up, gave him some peace. He kept his canes around just in case though.

Twice this fall he has been hauled off the field at his school (he's in the marching band) because his legs stopped working again. In my gut, I think it's DWS but no one will even take me seriously when I mention it.

My husband died when he was almost 4 in a car accident, leaving me with him and his 5 siblings to raise. I have no idea what condition he'd be in now if he were alive, but a close friend in the same unit who was with him there developed schizophrenia at age 48 (normally onset for such a thing is in late teens/early 20s). He's 100% disabled. Does anyone have anything similar to report? Are there any studies of family members born after the war being done?

Where, in the U.S., are you located? And, there is a reason why I ask.

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Dottiek, I am sure you will be able to find help here for some of your difficulities experienced by you and your son. I am glad you joined this site. People here look out for one another, and if they don't know an answer, they will try and seek it all over.

Hope is offerred here too. Your husband serving during Desert Storm is something you and your family can be proud of, and we salute his service and you loss.

May you find assistance on your journey, answers to some questions, and people who appreciate vets and their families. :rolleyes: halos2

Dottie,

This is a web site I found some time ago. The people here conduct research that might be of help.

Good luck,

Bergie

http://www.umrc.net/

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Gulf War Baby Registry (ABDC)

930 Woodcock Rd.,

Suite 225 Orlando, FL 32803

1-800-313-2232 1-407-245-7035

This would be a good place to start.

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I just found this site, after several years of frustration. I'm hoping someone out there has some common ground here. My husband served with 2ACR in 1991. Our son was born 10 months after his arrival home. He's now 17. As a baby, he seemed to have strange "seizures" that were never diagnosed, and lung problems. About age 3, he "outgrew" it all, but I recall seeing then in the Stars and Stripes an article about possible problems with DS kids, esp. their lungs and 'strange neurological problems'. Of course, I cannot find it now.

About age 13, he started to have problems with pain in his legs. Doctors first passed it off as "growing pains"; soon after it developed into sudden weakness--he would just be walking down the hall at school, home, anywhere, and suddenly fall down, his legs too weak to hold him up. He endured years of poking, prodding, million dollar workups--no diagnosis. EEGs "normal"; muscle studies "normal". Blood tests normal. Once again, the problem seemed to let up, gave him some peace. He kept his canes around just in case though.

Twice this fall he has been hauled off the field at his school (he's in the marching band) because his legs stopped working again. In my gut, I think it's DWS but no one will even take me seriously when I mention it.

My husband died when he was almost 4 in a car accident, leaving me with him and his 5 siblings to raise. I have no idea what condition he'd be in now if he were alive, but a close friend in the same unit who was with him there developed schizophrenia at age 48 (normally onset for such a thing is in late teens/early 20s). He's 100% disabled. Does anyone have anything similar to report? Are there any studies of family members born after the war being done?

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My son was born with mutiple birth defects and I was told it has nothing to do with desert storm. He had three holes in his heart ,cleft pallet,low blood sugar,hernias,poor eye sight,bad hearing,low muscle tone,the whole top of his head was a soft spot,slight developemental delays,he has needed growth hormone shots numerous times. He didnt walk until he was like 2 years old. he cant run normal because he isnt flexible enough in his hips. He has fluid on his brain but not causing pressure. I dont think I have left anything out! I had a geneticist tell me that I contribute so little that desert storm shouldn't affect my kids. I really would like to know why these things happened. Let me know if anyone would like to talk about this.

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Welcome to Hadit douggle

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This sounds similar to agent orange and Vietnam Veterans' children being born with birth defects. VA only offered special benefits if the AO veteran was female and served in theater prior to giving birth to the children. Male vets who came back and fathered children received no special benefits.

I'm no expert on this, so I could be wrong. I just remember reading about this a while back. Not sure if there is any connection to these cases.

Edited by Vync

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I just found this site, after several years of frustration. I'm hoping someone out there has some common ground here. My husband served with 2ACR in 1991. Our son was born 10 months after his arrival home. He's now 17. As a baby, he seemed to have strange "seizures" that were never diagnosed, and lung problems. About age 3, he "outgrew" it all, but I recall seeing then in the Stars and Stripes an article about possible problems with DS kids, esp. their lungs and 'strange neurological problems'. Of course, I cannot find it now.

About age 13, he started to have problems with pain in his legs. Doctors first passed it off as "growing pains"; soon after it developed into sudden weakness--he would just be walking down the hall at school, home, anywhere, and suddenly fall down, his legs too weak to hold him up. He endured years of poking, prodding, million dollar workups--no diagnosis. EEGs "normal"; muscle studies "normal". Blood tests normal. Once again, the problem seemed to let up, gave him some peace. He kept his canes around just in case though.

Twice this fall he has been hauled off the field at his school (he's in the marching band) because his legs stopped working again. In my gut, I think it's DWS but no one will even take me seriously when I mention it.

My husband died when he was almost 4 in a car accident, leaving me with him and his 5 siblings to raise. I have no idea what condition he'd be in now if he were alive, but a close friend in the same unit who was with him there developed schizophrenia at age 48 (normally onset for such a thing is in late teens/early 20s). He's 100% disabled. Does anyone have anything similar to report? Are there any studies of family members born after the war being done?

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