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johnjjr

Als & Va Research

Question

I just read an article on MSNBC titled "Lou Gehrig my not have had Lou Gehrig's disease". The story first appeared in the New York Times. Seems the Mass. VAMC research center and Boston Medical Center have been conducting studies concerning ALS. It appears to me, after reading the article, that the VA is gearing up to deny a lot of ALS claims under the new AO presumptive. (JMHO) I'm not tech savy so I'm hoping Wings or someone with more knowledge than myself can set up a link to the article. It was titled "Study says brain trauma can mimic Lou Gehrig's disease" in the Times.

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I heard that news yesterday on Fox news and you are right-this can have repercussions regarding the ALS regulations:

http://www.msnbc.msn.com/id/38739308/ns/health-the_new_york_times/

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Thanks for setting the link Berta. Eventually I'll learn to do that myself. It just appears to me that the VA is saying "Here's a new presumptive for you, but nobody's going to get rated by it". Smoke and mirrors again.

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We have a few ALS vets here John- and there are probably many we are unaware of who have filed claims.Or have been awarded.

This news greatly concerns me for them.

Someone said here once-"what the VA giveth ,it can taketh away"

and it does seem that is so sometimes....

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Time.com article on this is interesting:

“The new study is by no means conclusive: the number of brains analyzed was small, and the finding needs to be replicated by other groups before doctors treating patients can even think about applying the results in clinics. But the report raises the intriguing possibility that ALS may be a catchall for several different but related motor-neuron disorders. "If you ask me how to distinguish between motor-neuron diseases and ALS, there is no clear distinction," says Dr. Hiroshi Mitsumoto, director of the Eleanor and Lou Gehrig MDA/ALS Multidisciplinary Care Center at Columbia University, describing the current lack of a definitive way to diagnosis ALS. "ALS is a disease of unknown cause, so we find the patient's [medical and family] history, examine the patient and exclude all possible diseases mimicking ALS."

Read more: http://www.time.com/time/health/article/0,8599,2011489,00.html?xid=rss-mostpopularemail#ixzz0wyFjKU5i"'>http://www.time.com/time/health/article/0,8599,2011489,00.html?xid=rss-mostpopularemail#ixzz0wyFjKU5i"

http://www.time.com/time/health/article/0,8599,2011489,00.html?xid=rss-mostpopularemail

Time.com article on this is interesting:

“The new study is by no means conclusive: the number of brains analyzed was small, and the finding needs to be replicated by other groups before doctors treating patients can even think about applying the results in clinics. But the report raises the intriguing possibility that ALS may be a catchall for several different but related motor-neuron disorders. "If you ask me how to distinguish between motor-neuron diseases and ALS, there is no clear distinction," says Dr. Hiroshi Mitsumoto, director of the Eleanor and Lou Gehrig MDA/ALS Multidisciplinary Care Center at Columbia University, describing the current lack of a definitive way to diagnosis ALS. "ALS is a disease of unknown cause, so we find the patient's [medical and family] history, examine the patient and exclude all possible diseases mimicking ALS."

Read more: http://www.time.com/time/health/article/0,8599,2011489,00.html?xid=rss-mostpopularemail#ixzz0wyFjKU5i"'>http://www.time.com/time/health/article/0,8599,2011489,00.html?xid=rss-mostpopularemail#ixzz0wyFjKU5i"

http://www.time.com/time/health/article/0,8599,2011489,00.html?xid=rss-mostpopularemail

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