My Husband is 70% total with an increase for PTSD, EE, both knees, and degenerative Disks in his back. (We are waiting to hear what the outcome of the increase from 70% will be.) We applied for the Caregiver program in Aug 2017. We were accepted for the trials last week of Sept 2017. We were seen by an OT therapist, and had the initial phone call within a week of acceptance of the application. Then it all stopped. We were told he had to see a MH evaluator. We did not hear anything until mid December. I finally received my caregiver training online the day after Christmas. (I completed it that day.) I received a phone call from our local VA caregiver support coordinator Dec 28. She told me to stop calling. That our area was one of the busiest areas for this program. (NE Florida) She said they had ONE person to do home visits, and that it "should" be late January-Mid February before a home visit to be scheduled. She stated in the beginning that if we got this far into the program, I would know if we had been accepted, or denied and the tier level. She told me on the last phone call that we wouldn't even be accepted until after the home visit, and another clinic chart evaluation. It has been a complete nightmare. My Husband has a very light part time job. (Which he frequently cannot go to.) I resigned from 2 jobs in 2016 in order to be at home. (He could not handle being at home with our children.) Fall 2017, I had to withdraw from my Bachelor's program, because even for 2 days a week he could not be at home alone/with our children. We have already been screwed over with his Medical Separation from the USMC. Multiple Mental Health providers had statements at testing to his PTSD, and other issues. The C&P exam for MH put him at 30% for an adjustment disorder. He was medically separated May 2013. It took us 2 years to get him a PCP at our VA, and to get him seen. He went without medication until 2017. Due to his severe EE, and esophagus issues he cannot swallow much. The VA told us there was not much in the way of approved medication that he could take. It took us quite some time to finally get approved for VA referrals for outside Doctor's who would actually listen to what was going on.
It's sad that his increase (which tends to be a nightmare) is going faster, and more smoothly than the Caregiver application. I call about once ever 2 weeks. There is no ebenefits for us. (Caregiver) We don't have any way to tell when, or if we are going to get approved. Everyone I have called from our support lady, to the hotline, to the patient advocate, all seems to say the same things. Either we don't know, or we understand its frustrating...but imagine the back pay!!! We have no idea if we are even going to get approved. So how can we look forward to backpay???
Easily the most frustrating thing we have went through, besides the issues that got him here in the first place. A complete nightmare. If we didn't completely need it, I would tell them we didn't want to do this dance any longer.
Anyone else have a recent time line for this program? We will be looking at 5 months in February. No home visit. Training complete. Assessments complete. Thank you!