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Spidey

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Everything posted by Spidey

  1. Hi Kanewnut 1) I never got an honest answer from the V.A. rep- had troubles sometimes with D.A.V. whom I ALWAYS DEALT WITH IN PERSON. An imperfect solution- but 100-to-1 better than the V.A. rep. Rationale.. You do not go to the mechanic that f-ed up your car expecting an honest answer to "How did you f-ck up my car (my claim). Better still, do not take your claim to that dealership at all- they are invested in making their mechanic look infallible. It is possible to foul up a claim and make it un-foul-up-able. However, if you ultimately win a TDIU claim you can (and I did) get years and years of back pay- the only way I would ever afford a home purchase was the years of suffering got finally compensated for a DECADE LATE. Don't give up, fight, if nothing else, you pave the way for others. Other. Nowadays, I do not know if law has changed- before, it was ILLEGAL to use a professional attorney UNLESS you had already lost your case and appealed to BVA. Some say this has changed. There may be a third option- a REAL attorney. Ask around at Hadit- I bet they have a current answer. Other. I would know my claim, all the details, and have THAT in a paper binder to review and use to find a good D.A.V. person. I did go ultimately to the P.V.A. because the NSO at D.A.V. retired and the replacement was ...something vastly less capable. With spinal cord injury OR dysfunction, P.V.A knows to find out if you have bowel, bladder, creative organ dysfunction, loss of use, which helps your TDIU claim AND is a Special Monthly Compensation entitlement of its own- but SAVE THE DETERMINATIONS because (as my case, today) I cannot find the actual, current, SMC or TDIU determination to shove in the local CBOC face to establish a genuine, progressive, end in death, spinal cord disease-dysfunction. Hope this helps a lil bit. If poor, hit up yard sales for PC, surge suppressor, older printer, but ya still gotta get print cartridges. I found a flatbed scanner VERY USEFUL and often contains a fax machine- when people are helpless, useless, unwilling to go to your record- you fax them in the face with your evidence. This also means you KEEP THE ORIGINALS and get a PAPER output at every appointment. DO NOT use the online system (I do not, anyways) when my records got fouled they said I DID ITvia the online system which I NEVER USED AND NEVER SIGNED UP FOR. It is nasty. You have to get nasty to merely get the minimum- TDIU- then you gotta HIDE FOR 20 freaking years for it to be permanent. Geez. Now I am sad. Spidey
  2. Hiya Kanewnut! Yeah, the one thing I can do is type like mad- laying down for a period of time. Here is what helped me (choosing brevity over precision) get benefits. 1) Snuck into civilian hospital as illegal alien to get CT and honest diagnosis- shove in V.A. face. 2) Have brother start yelling so they teach me lesson by sending to SCI-D V.A. 3) Keep written notebook of phone log, what people say to you. 4) Witness at each and every appointment- take notes for you. Checked your reflexes through boots? Hm! 5) Bug your own phone- older telephone answering machines do this. Fill up, get another one. repeat 6) Every time you get any med from V.A.- write in log book 7) SKIP the V.A. claims rep- seek out D.A.V. or P.V.A. Get seen by V.A. for serv conn disability- watch out for increasted injury from malpractice (whats with the glasses-smiley face- I don't know) 9) Keep a log SEPARATE from comms log about symptoms, reaction to daily self care, living activities. 10) Do not take motrin or other meds before being examined that briefly make problems less detectable 11) If your doc is a boob- do not delay- get a different one. If they do not speak good English- STOP. 12) I had to move to a V.A. region that was not devoted to denying access (for whatever reason) 13) Get written testimony from any friends, co-workers, former co workers- family testimony less valuable. 14) Learn the law- BVA decisions- and precisely what laws and criteria apply to your disability 15) Inservice medical data- get it into paper form, put in binders so you can sort it, see it, chonologically 16) It turned out Social Security was WAY WAY faster and easier to get- despite the law using V.A. data. 17) Do not immediately appeal every decision- a final unappealed decision is appeal-able for years- get evidence to back up where the V.A. decision was wrong. These were the painstaking, decades long, things I did from before there was an Internet to do claim research in order to get the minimum. I am sad to have you tell you how rotten it is. Your inability to function physically will either help or be used against you when you cannot appear as if fully able, capable, healthy, ambulatory. You must be akin to a legal expert and in full capacity and it is so, so sad as it is impossible, mostly. That, incidentally, is how a lowly mechanic learned to type- so something good came of the V.A. treadmill. I would have never done crap online- just a junkyard devildog- if not of necessity. Now, V.A. is STUCK with me. The cartoons may help ease the pain, Kanewnut. Spidey
  3. Hiya Kanewnut! I can only relate with certainty my experiences to help others (and this is actually an appeal for legal help) since anything else does more harm than good. I tell the truth no matter how embarassing. 1) I feel good from taking low dose oxycodone (5mg) start of the day. I never sleep well, wake feeling worse than before bed. I do not get enough excercise- it is painful and for long afterwards, causes nerve injury (more spasms, numbness, sometimes permanent). The low dose can be exploited like a surfer rides an ocean wave- instead of working up to doing something productive ten hours into the day- when the world has already gone home. The point of pain medication is to treat pain. Pain pulls the psyche down over years. Persons I can hardly restrain from calling names (professionals) do not have these problems and interpret facts to suit their arrogance- this is PROFOUNDLY so at the local V.A. clinic. They lie, play phone tag,. change meaning of words, tell me the doctor does not know how to treat pain, then in an appointment, the DOCTOR tells me I said it. Some are good people, some are the lowest skim off the top of the worst scum on Earth. 2) Over many years, I discovered if prescribed too much opioid, one takes opioids the next day in part to treat taking opioids- that is addiction. However, if I only took one, 5mg, oxycodone per day, the evenings would be hell. So I take the other three evenly distributed across the day even though they seem to do nothing at all. After 19 YEARS of doing this, I learned- less is more palliative good and less downsides. 3) I like to say Pills Are Not Priests! This means no matter who is prescribed or taking a drug, the drug has the drugs effects, dependent in part upon dosage. When I was TRICKED into taking as I was verbally told, then the microscopic print on the bottle said something else and called in, I discovered my doctor had been replaced ON THE PILL BOTTLE but not as my PCP. This means the prescriber cannot be reached, asked,l contested. I figure if this person shows up for Douchebag of the Universe, he will probably win. (tip o th hat to Jimmy Fallon, Kirsten Dunst MTV music awards- Youtube it) 4) A year without opioids shows me, instead of being up and about, supervising people remodeling home, I am in this f' ing recliner waiting for the SCI-D staff to do their f'ing job- and discover they (the Best of the Best) are also playing the same games as the local clinic- and no coincidence- the local clinic must fill out a form to get SCI-D to see me, so I can go get probed (and often, new infections, I have MRSA for life now) and drive 800 miles round trip- spend weeks- just to get the pain med that makes a) getting around b)driving or flying c) walking around a hospital d) not being distracted by pain so I don't focus on the moment. The spinal cord disease is static- and the United States is seen via Veterans Administration, to be crumbling and trying to get me to try new things- and they ALWAYS mention the things I already tried BEFORE EVER TAKING OPIOIDS. It was the last resort. Get mad. Get REAL: mad, and get REAL with your heart (all of you) and notice if the strong will not defend the weak, then our nation, the most powerful, becomes weakened- just as it is now- training kids that Nationalism is bad, America is bad,. have you noted there is only one historical figure not treated as scum- Tesla- and all our forefathers are now scumbags? The enemy nations win and the V.A. is the easiest to alter, bunglef.ck, exploit their long term SNAFU, let greed and laziness in V.A. rule the days. I should stop- but there is absolutely no doubt a) Pain relief is attractive, if you do not say it JUST RIGHT they will say you like the euphoria b)Euphoria happens when you get a freaking cannon ball backpack off your back for an hour c) There is an underlying problem making U.S. citizens more like stupid cows to be herded with phrases like ...Didn't you watch the news... as why they stopped opioids. It is just sickening, no pun. Many will die- not from suicide- but from declining health caused by being immobilized so their bodies weaken (decondition) as I know so, so, well. When I called the White House Hotline for VA problems a couple years back (MRI and cardiac results not forthcoming, delayed months for both tests) the local clinic, so far from D.C. plainly, but sneakily, showed their displeasure and plainly hampered my effort at reasonable health care further. I would not wish my problems on them- but if they had ONE FREAKING WEEK of it, wiggling like w WORM to try to lessen the pain in extremities, why, that may wake them the hell up. Thanks for your point of view I do not question your experience. Welcome anyone to consider hard won experience spanning almost 40 years. Insert appropriate song here... Lyrics for hearing impaired.. Fight for others it does help. I've been trying There's no denying. It's sending me Out of my mind. I've seen reason Change to treason. It's losing its sense Of all kind. How much longer will it take For the world to see. We should learn to live And simply let it be. Bloodstone, bloodstone. In the night time Wake in fright. I'm so scared of the game That's being played. Start to wonder What's going under And how many deals Have been made Spidey
  4. Hello veterans! A quick little tip that pays off well and a true story afterwards. The V.A. is made up of people that vary in their willingness to do their job- some are way good and some between and others are unspeakably, willfully, negligent. One thing I noticed that worked to get V.A. to do its duty is HAVE A WITNESS when you are seen- even in the exam room. This is better than wearing a wire. It forces the human working for V.A. to stop pretending their interests come first. (Sound familiar?) A family member usually can be trusted to either be mute, speak up, and watch, even take notes, for you. Up to you to decide which. When two people are together, one asking, the other empowered to give, the giver has all the power. When there are three people, suddenly, bullsh.t does not fly so well. Platitudes and generalizations fall flat. There are ineffable dynamics that tip towards truth rather than to the V.A. person burning up the clock towards their next coffee break when a third party is present. End tip. True Story. Invisibly disabled in spinal cord means the prejudices of people run them if they are careless. An MRI, expert finding, absent reflex, region of numbness are nothing compared to the power of negligence as a habit. After a year of this negligence (seeking disability benefits, DAV says ...Go to V.A. and get help for your untreatable problem... so I did) I became truly unable to stand or walk. Still, the VA hospital had an attitude about me, had seen me around, and set their faces against me. I had no choice but call my brother (I normally keep family out of V.A.) and ask him to carry the new MRIs to X-ray. Note- my spinal cord does not stretch and is utterly in control of my body position when it gets bad from overactivity- this was the case that day. My brother arrives after some time, helping me and the films get up to X-ray (this was 1993-4). In the short line, I could no longer stand, so laid down on low table. Xray peeps demanded I get off the table, so I was helped to the floor. They instructed my brother to get me a wheelchair- he knows better- asks for a gurney. They all denied it. They refused to imagine a normal looking person could require a gurney. My brother is cut from the same cloth as myself- we do not cut nor run nor tear. But he was not conditioned (as military members are) to just go along to get along, sort of follow authority leads. He raised his voice. He then YELLED. He then said HE would go find an effin gurney. What did VA do? They called the VA police. My brother so icy cool, asked if the VA police brought a gurney with them! Finally, some person high up at that VA appeared, nameless in expensive clothes, says ...Take him on gurney to see the PR person (that stands for Patient Representative, not what it really is- Public Relations control). And so we went. The P.R. person (supposed to take my side, right?) took the V.A. side and said ...Dr So and so says you are not disabled... so my brother asks ...Why did he offer to operate on an inoperable back problem then?... The dialog went on like this- the DAV guy was right- going to V.A. made me face the V.A. while my ability to walk and move declined and V.A. just played dumb. The PR person is told we want to speak to their supervisor. Then another supervisor. Then we are routed back to the P.R. person who accompanies us to the HMFIC at that VA hospital- it is notable the walls are in wood panels, with colorful drapes, and expensive looking stuff in his or her office (memory does fade). The P.R. person says ...Well, we will send you to the SCI unit (Spinal Cord Injury and Dysfunction unit) so you can see what a spinal cord disabled person looks like at that hospital.. See what my brother started by merely standing up as a witness? When I got to that SCI-D unit (dysfunctioned spinal cord) they saw me for a year but took minutes to do sharp-dull tests with a needle to confirm the level of my spine that was numb (behind my back- objective evidence) and matched it to the leg problems. It took minutes but took me about 14 years to get that few minutes of expertise. That was about 1995-6. Now, 20 years later, the V.A. has decayed, become corrupt, PCP prescribing psychiatric drugs and not knowing it, nor why (antidepressant for chronic pain does help despite side effects) nor how the drugs work. Psychiatrists act out their own mental problems openly, lacking any third party witness. Other psychiatrists that forget why they prescribed a pill (for pain not depression, off label use) stick to my being depressed because they cannot remember two years before, two years before, and the original appointment and my original request. Drugs are now removed for chronic pain that work, owing to a new pop craze, called the opioid crisis, not the more apt Fentanyl Crisis. Doctors prescribe one thing, another doctor merely takes over and sends something else. Everyone able to hid behind their staff and the telephone and ability to no longer create PAPER medical records with their PHYSICAL signature. This necessity for witnesses can help most of you- if you have an apt family member with good self control. The mere existence of a third party forces V.A. outside its magnificent ability to deter with bullcrap and verbosity and citations that other vets need them right now. If THOUSANDS of us started having a witness, the V.A. itself may start to change back to its former functionality. Good luck Spidey
  5. I have to respect your report- was very afraid of addiction for decades before any opioid use- so I kept the dosage low. Most of the years was taking oxycodone, 5mg, the optimal number was 4-6 a day. A little relief at the start of every day could be leveraged into a day of increased activity. More than that, was taking opioids to treat taking opioids- just like taking Motrin for the (kidney harmed) pain in my mid back Motrin was causing. Thanks for the plain talk, kanewnut, I do wonder if higher doses are actually addicting (as opposed to tapering off in two weeks). Spidey
  6. This reminds me of the intel I have held since about 1993-4. There was a time a vet could go to the V.A. and be seen that same day for service connected disability. Vets began (with the Internet starting then) to organize in the waiting area they sat the day out (roughly) to see a doctor. This was AMAZING and great because one could get a second opinion in a second day. There was a MASSIVE built in checks-and-balances system, old docs with expert experience, new docs with new advances, able to advise the veteran the same day they visit. Now, we have the PCP program- a single doctor is the only access, and necessarily, via appointment only. This way, a doctor can FORCE A DIAGNOSIS and not be assessed nor corrected nor be accountable to the veteran OR his fellow doctors. See how awful the pop-medicine movements can be, invisibly sugar coated new solutions that are instead new ways to avoid doing their dang job? See how, now, even the DOCTORS are isolated into helplessness- can't cite OTHER doctors saying the same thing? See how the pop Addiction Recovery Industrial Complex (mixing and coining phrase) can afford those all-day-every-day-radio-and-TV ads can AFFORD the advertising? This is the decline and fall of America augmented with our stupidity and gullibleness multiplied by a foreign enemy moving (what I call) chemical weapons (Fentanyl) in through the clueless Postal Service and over the borders, under it, around it, or Way Over It. All the while, the aged, wizened, become fearful, and no longer counterbalancing the young, impulsive, pop-addicted, word based, masses. A related, distant example- The Cancer Societies, the ribbon societies they all make ever more claims of all capability and lack of any progress as reason to send them more money- calling themselves non profits, they get fat paychecks, sympathy., the ear of media in an instant, making their followers run around in circles to raise more money. I sincerely believe my situation, your situation, the reason Hadit is necessary, are all telltales of a much greater breakdown. I speak from decaades of watching new presidents (no disrespect) promise help for vets and the System (now called Deep State) just waiting out Reagan, Bush, Clinton, Bush Obama and now, dealying President Trump with fake baloney obviously fake- and media eats it up like starving ethiopians handed candy bars. Hadit could, may, be a solitary way to referee this overall problem, have long thought so. The one thing I can offer everyone is that humans are designed to suffer, be miserable, and shine brightest when taking on the misery directly, helping others with it. Remember, 20,000 years ago, an ice age erupted, and it was 10,000 years to a pillow or blanket. Don't get talked into being helpless- the weak part of humans. Thanks Kanewnut Spidey
  7. Hi there Oceanbound! Not fully sure of your whole post- but you clearly realize and relate the V.A. is anything but reliable when it comes to injuries they cause, or they THINK they caused. In my case, indeed, they played games with a) MRI type and denying a known spinal cord problem by citing a newer (no contrast) MRI b) Delay and obfuscate getting any paper, provable, results, c) rely on vet to merely TRUST digital records- that often disappear or are in a time warp of delay d) use the telephone and generalities to frustrate and impede (Yah, ya got a lil problem in your back there) The solution to taking a fuel truck of NSAIDS (approximately gallons over decades) is stop taking them- don't need a doctor to agree. I really believe insanity has taken over, politics in government, such that one-size-fits-all mentalities (very socialism-communism like attitude) is shown by taking millions of the only palliative treatment that works long term- opioids. If they were true of intent, would not be augmenting addicts with needles, drugs, food, shelter, exceptions to every kind of law (building homes in forest, sidewalks, alleys). This looks like exploitation of the pop-medical-movement for internationally based motives- started by the very real Fentanyl crisis. I can only say, when every other attempt to help me was wasted time OR increased injury, blocking the one thing that DOES work seems too, too, perfect to merely be helpless boobs reacting to the latest pop movement- go plea for help for addiction that is not real. Even searching Google, or Hadit, shows if you type opioid it auto fills with addiction. There are vastly more helped than harmed by responsible prescribers- yet nobody can speak up to defend the millions. Anyone knowing most aged know of the pain of joints, knees, hips, back, shoulders, particularly pre-BabyBoomers that worked their bodies to destruction. If your logic goes ..if I convince V.A. the harm to the kidneys constitutes cause to continue opioid prescribing... I agree wholeheartedly but, like your message says, V.A. is detached from any reality at present so reason and logic have no sway. Correct me if I err here. Spidey
  8. Hello Vetquest! I can only report (with confidence) what takes decades to learn... 1) Going without pain med with severe nerve pain pulls one down, away from normal life, almost invisibly. (1981-1996) 2) Getting prescribed opioids (I did NOT ask for it- was PRESCRIBED) was what I put off for roughly 15 years. When I did, my life began to MOVE OUT, figuratively and literally. 3) Refining other medications for chronic nerve pain (some antidepressants ACTUALLY take some of the sting (literally) out of nerve pain) helped a bit more atop opioids as did INFREQUENT use of NSAIDS to stop swelling, thus avoiding more painful nerve injury. Muscle relaxers only for spasm and cramps and used extremely sparingly- else spasm and cramps ramp up. 4) Lowering the dosage to a sufficiently low amount such that day after day, decade after decade, the pain relief from opioids remains was key- and taking the same amount each day to avoid rollercoastering (if you will) appears to be (nowadays) an impossible revelation for medical staff to take heed of. 5) After 15 years without, 15 years with (roughly) and being cut off for political, non medical, reasons, I meet up with ...Old Helpless Spidey.... from pre-1996, where the smallest tasks seem unrealistically difficult, where pain is from arms, legs, and points between, and essentially stay in a recliner so that the increased pain from activity is avoided. Over time, even the interpersonal muscles atrophy and it becomes very difficult to leave the house. Neurons are like that- they reinforce your daily habits with aging, good or bad. Notice you can be a slave to good or bad habits- suggest the former. There is absolutely no doubt in my mind a) Taken sparingly and as indicated means some REAL relief from pain- (stating the obviously known until a couple years ago) and there is no downside, except do not stop suddenly. b) My sense of purpose, joy in life, quality of life, ability to ignore the remaining pain is now gone- albeit with a slightly more adept way with words and slightly clearer mind. c) In a year or few, as CDC is now acknowledging, doctors cutting of the severely disabled with intractable pain will recognize the deaths they cause playing it safe or overreacting to the pop movement augmented by the real Fentanyl Crisis from overseas. A chemical weapon, rather literally, yes? This is America now- citizens are just herding cows for the public servant to be served by (get that?). It is a national problem, an abuse of what it means to be a U.S. citizen- and there are non-medical evidences of this reversal into national decline. I firmly believe most veterans and service-members can comprehend all this. In other words, HANG ON TIGHT it is gonna get worse (until the evidence is blatantly obvious owing to the deaths) before it gets better. d) Even with decades of responsible use, there was no withdrawal if tapering off over a couple of weeks- pills are not priests, they do not spare or punish or judge- but if one is responsible, there is no harm from opioid use- unlike any other drug I can name, any pop movement excepting the things that do no good nor harm. If there were pain medications that were other than opioids, would try them- but there aren't (I guess one can say Novocaine or Cocaine is but know better than that!) any. The lidocaine patches left blisters that took many months to mostly go away. NSAIDS make new pain, stomach symptoms (stop eating right) and intestinal problems. Want more? NSAIDS harm either the liver or kidneys, for me, it is my kidneys that hurt with more than 1, 200 mg, motrin every other day. Doctors are human. They do not like reality plastered in their faces- if they are harming you- you cannot tell them crap. They are unthinkably adept at wordplay and letting their underlings block you. Other doctors (I know of one exception) will fall in line behind the first errant doctor, and when forced, write soothing sounding words that insulate responsibility away from themselves and the doctor at fault. In my experience- hundreds of appointments spanning decades at V.A., it is a statistical certainty you will be injured every X (I think, 30) visits. Every time they stick something in me, I end up worse. Some are permanent. There is nobody to turn to. When the powerful will not defend the weak, the next weakened are... the powerful. Trust your senses, your eyes, ears, Vetquest, they are sometimes the only things left to trust- and many will seek to make you question even that. Other- Pain relief is attractive. The problem(s) evidentiated by the one-size-fits-all opioid attitude are political- vastly wider than merely maltreatment for chronic pain. I notice a genuine, unchanging, neurological disease does not permit oneself to lie or pretend it is not there- It becomes like a meter or sensor. If nothing else, one way to get past it is try to help others- and this fuels my note to you- but is based on experience, not wishes. I can show you how neuro pain is like a super power- ready? Have you ever had a bad sunburn on your feet or legs? Remember? You could feel the heat of your hand from nearly two feet away. A super power to sense infrared heat. No magic. Neurological pain is similar- invisibly instructs the person, invisibly. For example, can tell you a) Too much Xbox bad because the arms are too still, use up oxygen by finger use b) Smartphones are slow-delay-harm, ones spine bends forward, the donut shaped rubbery disks between vertebra become wedge shaped, and when putting the smartphone down, the wedge end squashes against nerves- for life. If anyone can refer me to an attorney or representative to help me get the help, or get the truth out, would be very thankful. Good luck on your ...quest... Vet. Spidey
  9. Hello! Have spinal cord disease called Chemically Induced Adhesive Arachnoiditis of spinal cord- for forty years I am still with you. A defective Metrizamide radiopaque altered my cerebrospinal fluid for life. It took about 14 years for VA to grant benefits, treatment, owing to a Spinal Cord Injury Service unit doing the tests instead of discriminating. I got 100percent. They prescribed a rather high amount of pain meds- had already taken (in 1997) gallons of NSAIDS. Had tried all the other things. It is inoperable. For 18 more years, learned to refine (lower) medications and also moved back to the troubled V.A. region of my home town- and things changed dramatically- as if they did not respect the VA courts, the VA specialists, the documents, or were defending against (nonexistent) lawsuit. Still, they continued the medications including opioids and other palliative meds for about 17 years. A year ago, with the FENTANYL crisis renamed the OPIOID CRISIS, I was told I should ...just watch the news... as to why I was being taken off low dose opioids (as I had self-decreased, learning what works over the decades, was doing the best ever since inservice teenager). The V.A. CBOC (clinic) said they were unqualified to treat pain (a joke- had been treating for decades) and referred me without choice into the Choice Program where months passed without any help, into an appointment with a pit stained NON DOCTOR who wanted to put electrodes near my spinal cord. I was explained to (but I was dumb) they were DEFLECTING and used that term. Problem. Doctors injure me repeatedly since 1980 because they don't look into the actual disease. I can count them off. No safe approach to spinal cord, even outside, owing to adhesions (scar tissue). Scars do not dissolve any more. I caught Mr Non Doctor in lies like ...Hey, I treat hundreds of patients with arachnoiditis... but there are not hundreds of patients with it in the whole USA. I have lived through many pop movements in Medicine, least harm by avoiding them. A year passed without opioids to be SURE it was best to continue as long prescribed and last week, decided I had declined severely enough to KNOW FOR SURE it was best to have the pain control help. It is the difference between being immobile, declining, and getting something done, ro some activity, each day- strengthening. My current request for return to low dose opioids triggered the very recognizable same game, deflect, delay, dissuade, deny, make the veteran go away. Could not get a message to PCP doctor- just gets routed to an underling. Underling says ...Unless y0u are dying of cancer, we do not prescribe pain meds- I disproved him in one call (To SCI-D unit). I told him palliative care is what is done if no treatment for a severe pain condition. He tells me ...We did not treat you for palliative purposes- palliative means you are dying. This is blatantly a lie. So, I sense, from decades of experience, a familiar, mighty, brick wall of defense, The CBOC (local clinic) staff made clear they were unhappy I called the White House hotline to get a timely cardiac stress test and MRI to show the changes in the spinal cord two years back. Eventually, I got the test and MRI and a phone call- and no paperwork sent nor allowed- ...Yah, heart is fine. Yah, ya got a lil problem with your back.. (like saying Hiroshima had a lil fire cracker popped over it). The underlings are expert in interpreting facts to suit their arrogance. They have no need to merely look at the medical records and decisions even when I hand them to them. I am convinced digital records systems means local jerks can poison others with their arrogance, their ability to ignore reality, expert findings. The SCI-D Seattle people were supposed to call or inform me if I QUALIFY for SCI-D (Spinal cord injury or dysfunction- I am the latter). The same game seems in play- deflect, delay, dissuade, deny, then forget and let the vet start over- this is the game of the local CBOC for some ten years (since I started anew to find if any medical advances to the spinal cord problem- this forces them to either note a doctor caused (defective metrizamide injection to spinal cord)- 1980- disease or JUST HIDE. They just hide using delay. This is the M.O. of much but NOT all of VA. Frankly, am mostly in a recliner now, fear the change in spinal cord fluid (cannot dissolve neurons, glial cell defect) means the disease has worked up to neck- have all these arm, wrist, burning pains now the norm- The lower extremities hurt but in a dulled way now. All this pain, worse with activity, surely affects my fear of going out, going to doctor, and aversion to pain from (for example) going to get groceries. Will have bowel, bladder, other, changes for days, but not for sure. This indicates a very touchy situation, easy injury. Admit a certain psychological underlay at this juncture- not afraid to leave home, but still stuck at home. Afraid of doctors so expert in hiding, novices or underlines so confidently lying or (at best) guessing like crazy. The underlings PLAINLY replace access to the doctor as if I were a convict and they were the guards. (I've been in no trouble, not accused, just an inconvenient reality they don't choose to take account of) Conclusion. Low dose oxycodone was long indicated by doctors for a daily pain break that works- particularly well when weaned off NSAIDS, weed, and everything else. My life was doing the best ever a year ago- just when they pulled the rug out from under me. By recording all calls, keeping every scrap since (about) 2002, I can prove what I say- they (Local VA) expertly try to discourage participation in their CBOC clinic- but small town hospital is not well suited for complex neurological problems. Moving (my goal) involves a lot of pain, selling home, doing what I cannot really do- with or without pain management. Can anyone provide insight as to how to make the blind see, the mean soften their harsh ways, the linebackers blocking me from access make a hole? THanks for any tips- am old enough to say organs below the lungs all have problems now, got compensation for that- but VA, PVA, has no record, I do get the annual notice as we all do of compensation but it does not itemize, so I cannot prove what is known. It SEEMS LIKE moving back to my hometown returned me to the same pointed uselessness experienced from 1981-1990, which changed by moving to So California- then, over years, got benefits, treatment, reality, examination of body, bowels, bladder, neurology, prescriptions, but retuning to hometown resulted in return to comedy of dark errors as if they use their skills to try to get me to go away. The harder I tried, the better they deflect, their tricks (call back in a week, hang up in two rings, say I did not answer, long list) are so well known to me. I do get frustrated with them, and fear the harms they manifest and subtly (sometimes) threaten. You can call me SpiderMan because the arachnoiditis is web shaped and the spare neurons are a mixed blessing- fun to imagine some positive effect from all the scar tissue, which is actually neurons owing to altered spinal cord cerebrospinal fluid- I'm very brainy! Just not good politically. Here is a mid point YouTube visual of what CIAA is- mine was not from Pantopaque but from refrigerated (made toxic) Metrizamide https://youtu.be/QL6z1DnoJao?t=208 Imagine millions of little vise grips that selectively, mysteriously, clamp from one end of neurology to the other- and nobody will ever, ever, say what it does to the brain-so I pretend I am immune to keep my sanity.
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