Jump to content
  • Advertisemnt

  • 14 Questions about VA Disability Compensation Benefits Claims

    questions-001@3x.png

    When a Veteran starts considering whether or not to file a VA Disability Claim, there are a lot of questions that he or she tends to ask. Over the last 10 years, the following are the 14 most common basic questions I am asked about ...
    Continue Reading
     
  • Ads

  • Most Common VA Disabilities Claimed for Compensation:   

    tinnitus-005.pngptsd-005.pnglumbosacral-005.pngscars-005.pnglimitation-flexion-knee-005.pngdiabetes-005.pnglimitation-motion-ankle-005.pngparalysis-005.pngdegenerative-arthitis-spine-005.pngtbi-traumatic-brain-injury-005.png

  • Advertisemnt

  • VA Watchdog

  • Advertisemnt

  • Ads

  • Can a 100 percent Disabled Veteran Work and Earn an Income?

    employment 2.jpeg

    You’ve just been rated 100% disabled by the Veterans Affairs. After the excitement of finally having the rating you deserve wears off, you start asking questions. One of the first questions that you might ask is this: It’s a legitimate question – rare is the Veteran that finds themselves sitting on the couch eating bon-bons … Continue reading

  • Searches Community Forums, Blog and more

  • Ad Free Subscription.jpgOne Time Financial Gift.jpg

    Subscriptions and Gifts are NOT Tax Deductible. HadIt.com is NOT a Non Profit.

  • 0
lancelot6840

Mastocytosis Or Undiagnosed Skin Condition

Question

Hello everybody. I just found this site, and this is my first post. I have a disease called Mastocytosis. It first started during Desert Storm, but it was undiagnosed then. For 11 or 12 years it just appeared as little brown spots on my skin. In 2002 it started itching really bad. I saw 3 different Dermatologist, but they all gave different diagnosises. When I finally filed a VA claim in 2003 for an undiagnosed illness they sent me to their dermatology clinic who diagnosed it as Mastocytosis. After the diagnosis VA denied my claim do to the illness being diagnosed. I waited until September 2009, got all of my evidence together, got a doctors statement from my civilian primary care physician, a statement from my VA hemotologist, and had my VA dermatologist put notes in my VA medical records. All of the statements state that I had a skin condition in Desert Storm, and that the condition I have now is most likely the same condition that I had then. I also provided a medical examination form from 1991 (when I was still in the military) showing that I had a skin condition. VA set me up for a C&P exam. This exam took all of ten minutes. Their doctor decided that I did not have a skin condition back when I was in the military, even though the medical examination form states that I did. VA denied this claim last week strictly on what their doctor said. It went against all of the evidence and the statements from all three of my other doctors. Does anybody have a suggestion on the best way to appeal this decision?

Just a little background on this disease. It effects your skin first. It makes you itch all the time. Everything bothers my skin. Heat (from the sun, heating pads, moist heat), hot water, clothes rubbing it, etc. I am now allegic to things I have never been allergic to before. I have also become chemical sensitive. When it goes systemic it affects you liver, kidneys, spleen, lungs, and causes lesions. It can cause Degenerative Disc Disease, and cause lesions on your spine. I have had 3 Bone Marrow byopsies to see if it has gone systemic in me yet. It also causes muscle pains, bone pain, nausea, vomiting, digestive problems, among about 30 more symptoms.

I am wanting to find out if anybody here knows anything about this disease or if they have it. My Dermatologist at the Little Rock VA told me that he has seen more cases of Mastocytosis at the VA in adusts and children then he ever saw outside of the VA. This disease is what is called an orphan disease. It affects roughly .001%, roughly 300,000, people in the United States. Sorry for ranting, I had a lot to say.

Share this post


Link to post
Share on other sites

Recommended Posts

Welcome to Hadit.

carlie

Share this post


Link to post
Share on other sites

Ad

"Does anybody have a suggestion on the best way to appeal this decision?"

Ask for a reconsideration with any evidence they did not consider.

Make sure you mark your calender for the year NOD time limit-in case they dont get to the reconsideration request and the NOD time deadline grows close.

Share this post


Link to post
Share on other sites

There are 25 cases at the BVA for this conditon- this case shows how they rate it.

It can cause many problems -as you mentioned:

http://www4.va.gov/vetapp92/files3/9228843.txt

Thank you for your service-it angers me when the VA has evidencxe like you have and they deliberately ignore it.

Do you have a vet rep or service officer helping with the claim?

Share this post


Link to post
Share on other sites

Thank you Berta. I'll check out that link tonight. I have been using the DAV since 2003. For the most part, they have done a pretty good job. They just got me 50% for my PTSD last month. Added to the 60% I already had, it bumped me to 80%. I originally filed in 1993 when I first got out of the military, but was denied and I gave up. My wife got me on the ball in 2003. Thanks again.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Our picks

    • Type 1 Diabetes recent onset!
      I was diagnosed with Type 1 diabetes in September 2017 OUT OF NOWHERE.

      i am a Navy Reservist and deployed in later 2009 to mid 2010 and again later 2014 to mid 2015; had a 2 year recall between those deployments.  

      Only healthcare received since commissioning in 2008 was from the Navy and no issues EVER.

      insulin dependent and have dietary restrictions and in a non deployable status.

      VA denied initial claim due to Type 1 not showing on active duty and now appealing.

      Anyone with successful experience getting a rating with my circumstances?  I live in Upstate New York.
      • 9 replies
    • Agent Orange Kadena Afb Okinawa
      I am looking for anyone who was on Kadena AFB, Okinawa or .Chanute AFB, IL. My dad was there from Oct. 68-April 70. He has ichemic heart disease, diabetes which has resulted in the amputation of his right leg below the knee and peripheral neuropathy. We were denied in 2002 AMVETS filed a claim on his behalf for heart condition, diabetes and back problems. I refiled in December 2011 and have just received the claim statements and medical release forms. I am familiar with filling out this paper work because my husband is a combat veteran of Iraqi Freedom. I have been reading articles from the Japan times and I am a member of the Agent Orange Okinawa facebook page. Another thing that helps make my dad's case is that he was on Chanute AFB, IL and it is on the EPA Superfund list and has PCBs/Pesticides and Dioxins/Furans listed as ground and water contaminants. I welcome any advice, tips or articles that I may have missed in my own research.
        • Like
      • 15 replies
    • CBO Options for Reducing the Deficit: 2019 to 2028 Published Dec 2018
      CBO Options for Reducing the Deficit: 2019 to 2028 - This CBO Report has been making the news. This post includes parts relevant to veterans. Nothing has been decided as of yet and some seem very unlikely but you never know. Forewarned is Forearmed.

       

      https://www.hadit.com/cbo-options-for-reducing-the-deficit-2019-to-2028-published-dec-2018/
      • 8 replies
    • 2019 Veterans Benefits
      State Benefits, Space A and More ... https://www.hadit.com/2019-changes-to-veterans-benefits-state-and-federal/
      • 2 replies
    • Appeal granted and closed.
      My appeal was granted and closed on November 9.  I got an unofficial notification from the DAV on November 15 stating "appeal granted with an evaluation of 30%" which is great!  My question is this:  How long until I get the official notification from the va? Nothing on ebennies has updated since the appeal closed. Appeal is now in historical and just says complete and at originating va office. I understand no one knows va timelines to a tee but a general timeline would be great.  Thank you all! Hope you have a Merry Christmas!

       

      Edit:  This was my first time appealing and it was a VBA grant. 
        • Like
      • 6 replies
  • Ads

  • Popular Contributors

  • Ad

  • Latest News
×

Important Information

{terms] and Guidelines