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Third Stage Parkinson's

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I sent my pcp a secure message, stating that four of my medications had zero refills and one of them was hydrocodone 5mg and it was discontinued without notifying me. One thing that gripes me is the VA doesn't know what my disease and other Veterans Disease's are doing to our bodies, unless they have the same disease. Like the old saying states, YOU DON'T KNOW UNTIL YOU WALK IN MY SHOES. I believe they don't care how much we suffer. Even the specialist, say a neurologist, when you tell them of secondary complaints of chronic fatigue, chronic pain or can't sleep at night etc. they don't believe that they are affecting you to the point where you become useless to your family, can't do physical work, wake up every night with terrible pain and can't go back to sleep, can't drive and the most important to me of not having the energy to play with my Grand Children. Chronic pain, fatigue and lack of sleep are the three major complaints off 50% of individuals with parkinson's

yet they won't believe you. Enough complaining. I'll continue to live my life by Faith.



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Sorry to hear of your troubles bud. I have Crohn's, and TBI among other issues. When I was medically retired last year, I went 6 months with no meds, because the VA and Navy were fighting on who was going to pay the Medication Bill. Now I have SSDI, VA and Navy and yet still have the issues most of the time. God Bless and good luck

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