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    When a Veteran starts considering whether or not to file a VA Disability Claim, there are a lot of questions that he or she tends to ask. Over the last 10 years, the following are the 14 most common basic questions I am asked about ...
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    You’ve just been rated 100% disabled by the Veterans Affairs. After the excitement of finally having the rating you deserve wears off, you start asking questions. One of the first questions that you might ask is this: It’s a legitimate question – rare is the Veteran that finds themselves sitting on the couch eating bon-bons … Continue reading

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    • How to get your questions answered...


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DonH

Monomelic Amyotrophy

Question

ALS Variant?

 

I'm a Vet Wife. I post on behalf of my husband, I'm his note taker at doctor's appointments and consults.  I'm his support system and all around cheerleader. Lord knows we have had our VA battles. All these years after Vietnam, the onset of my husband's emerging illnesses, obviously percolating internally has emerged  one after another. We've seen subtle signs and some not so subtle. But didn't; know what those sign meant. The VA didn't do a very good job of educating the older veterans about what to be aware of regarding SC disabilities,

My veteran husband's a Purple Heart Vietnam Veteran  served in US Marine Corps. My husband  has several service connected disabilities. My husband diagnosed with Monomelic Amyotrophy recently; it is a Motor neuron (MND) disease that is the umbrella covering all type Motor neuron diseases and variants. To which ALS/ Amyotrophic Lateral Sclerosis and variants falling under the same umbrella as being classified as Motor Neuron Disease (MND). As exhibited in cases of muscle loss: Monomelic Atrophy.

ALS causes degeneration of nerve cells in the brain and spinal cord that leads to muscle weakness, muscle atrophy, and spontaneous muscle activity. The VA Doctors pondered whether my husband had ALS or MS. Yet, the Neuromuscular Head Physician conceded that my husband's illnesses was an ALS variant because his illness fell under the umbrella of Motor Neuron Diseases as did ALS......is a Motor Neuron disease. ???? We don't know how VA will decide.

Other complicating issues:

*Spinal issue (S Curve of spine)

*Multi focal motor neuropathy associate with Diabetes 2 is a part of the mix/entwined as well. 

 

However, most severely is the inability of identifying the exact reason for the monomelic atrophy.

Although it was hoped a more exact finding will be determined when all results of updated blood tests were in.

On May 2017: *Blood test are in; determination that no immune diseases are present

Possible treatment of an intravenous treatment once every three months or medications with steroids would be beneficial. No effective treatment available.

 

MMA

Diagnosis. 

Inflammatory Arthritis is Part of the neuropathy (Special kind of neuropathy)

As well as severe spine problems. Very rare complicated illnesses intersecting and exacerbating primary and/or secondary with veteran's service connected disabilities.

 

Monomeric atrophy......Veteran has lost the use of his right hand and right forearm weakened and wasting away.

One limb atrophy

See notes…..described as one limb muscle atrophy

 

Spinal cord (S curve of spinal cord) compression on top on addition the monomeric

 

Toxic agent like Agent Orange could more likely than not" a contributor for neuropathy.

 

Immune diseases (no)

 

Deterioration. Of bones on vertebra

Spondylosis...inflammatory arthritis 

Acts like spinal cord injury 

 

(Findings of EMG) EMG to confirm the diagnosis ( Neuromuscular VA Physician at Michael E. DeBakey VA Medical Center, Houston, Texas)

Table of Rated Disabilities

Disability

Rating

Decision

Related To

Peripheral Neuropathy, Left Lower Extremity

 

Not Service Connected

Denied as…. early as 2011… Yet, D to pinpoint as severe symptomatic complexities of Monomelic Amyotrophy variant of ALS in 2017….should be cued.

Peripheral Neuropathy, Right Lower Extremity

 

Not Service Connected

Denied as…. early as 2011…  Yet, ID to pinpoint as severe symptomatic complexities of Monomelic Amyotrophy variant of ALS in 2017….should be cued

Agent Orange - Vietnam

Neuropathy, Left Upper Extremity

 

Not Service Connected

Denied as…. early as 2011…  Yet, ID to pinpoint as severe symptomatic complexities of Monomelic Amyotrophy variant of ALS in 2017….should be cued

Bilateral Hearing Loss (claimed as diminished hearing)

0%

Service Connected

 

Tinnitus (claimed as ringing in both ears)

10%

Service Connected

 

headaches

 

Not Service Connected

 

depression

 

Not Service Connected

 

skeletal arthritis aching of the joints (unspecified)

 

Not Service Connected

Arthritis denied as…. early as 2015…  Yet, ID to pinpoint as being symptomatic complexity of Monomelic Amyotrophy variant of ALS in 2017….should be cued

post traumatic stress disorder (PTSD, also claimed as depression and anxiety)

30%

Service Connected

PTSD - Combat

Hypertension

0%

Service Connected

 

Neuropathy, Right Upper Extremity

 

 

Rectal carcinoma claimed as rectal cancer, a soft tissue cancer)

 

Not Service Connected

Agent Orange - Vietnam

Still on since  12/11/14 appeal

Remand 5/15

scar, shrapnel right knee

10%

Service Connected

 

09/18/2013

diabetes mellitus type II

10%

Service Connected

Agent Orange - Vietnam

07/06/2015

prostate cancer

100%

Service Connected

Agent Orange - Vietnam

07/06/2015

erectile dysfunction

0%

Service Connected

 

07/06/2015

 

Neuropathy, Right Upper Extremity Denied as…. early as 2011…  Yet.ID to pinpoint as severe symptomatic complexities of MonomelicAmyotrophy variant of ALS in 2017….should be cued Agent Orange – Vietnam

 

Edited by DonH
adding more details

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Thanks for all this great insight of information.

"I am sorry I have more questions here- the same ones the Agent should have asked you----Did the VA make a statement as to how they considered SMC (Special Monthly Compensation) in their 100% decision?"

The only SMC my husband gets is the SMC for his erectile  dysfunction under the VA.

"Was that a 100% Permanent and Total decision?"

It was just 100%....there were no other specifics.

"Does your husband receive SSDI solely for the SC conditions?"

No, I don't think so. Since my husband was already at SS age to be receiving SS for having reached SS age... No other type SS was ever mentioned. So is SSDI also available to him? That point has never been mentioned.  I don't think he receives any compensation solely for the SC conditions under SSDI.

"I got a friend 100% P & T with SMC under 1151 for surgery that required a colonostomy bag."

Was your friend not diagnosed with rectal cancer and it was found? Or were they suppose to operate on his hemorrhages and mistakenly operated on his rectum resultant in him having to wear a colonoscopy bag?

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If your husband gets SSA retirement benefits, he would not be able to receive SSDI.

"Was your friend not diagnosed with rectal cancer and it was found? Or were they suppose to operate on his hemorrhages and mistakenly operated on his rectum resultant in him having to wear a colonoscopy bag?"

The VA did not diagnose him with rectal cancer for years.They were treating him solely for hemorrhoids, and a painful SC scar and schrapnel due to a GSW ( he had 2 PHs) and a leg injury,caused at the VA,  that aggravated the leg GSW. (Gun Shot Wound) Since the hemorrhoid situation was getting worse, they sent him to a different VAMC to somehow treat the hehemorrhoids, but instead that hospital found that he had cancer and they had to remove most of his colon and give him a colonostomy bag.

I searched dozens of  BVA decision remands for  the May 2015 date but could not find your remand.

If we have the Docket # maybe we can help more.

 

 

 

 

 

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No, my husband is just on regular Social Security received upon the age of 65. He doesn't receive any other type Social Security.

Hmmm...so, the fact that your friend's rectal cancer had advanced to the colon is the reason he ended up with the having to wear a colonoscopy bag?

We once had a doctor say to us that the need for my husband having to wear a colonoscopy bag was due to the VA doctors having accidentally punctured my husband's colon.

I'm out of town and will

be back in town tomorrow. I will look through my husband's documents to locate the number of his BVA case. 

 

 

Edited by DonH

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"so, the fact that your friend's rectal cancer had advanced to the colon is the reason he ended up with the having to wear a colonoscopy bag?'

I guess I am explaining this wrong. He never had hemorrhoids. This was a misdiagnosis.

When he went to the other VAMC it was to see why the hemorrhoids got so bad with heavy bleeding and pain, and they found that he had adfanced colon cancer , not hemorrhoids. 

VA did not timely diagnose and treat his colon cancer and they could have.

I offered to help him file FTCA case (the first step in a lawsuit against the VA) but I also advised him that would reap a lump sum payment (I knew he would win that) and he would not receive any 1151 comp until the settlement amount was recouped. He preferred instead to just have the Section 1151 because he is not very 'money' savvy and told me he would have spent it all on Elvis paraphernalia.

The VA medical error could have  shortened his life and killed him by now. I think the colon cancer was Stage IV when they found it. Amazingly he is still alive and doing well. No alcohol, no smoking,good diet  and he walks a few miles- about 4 times a week.

As your agent would know ,malpractice is determined when the diagnosis and treatment is not comparable to the "standard and Usual medical community." Meaning -non VA doctors would have taken different steps to properly diagnose and treat, in a timely fashion, the  actual cause of his rectal pain and bleeding.

 

 

 

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Got it! Thanks!

God bless your friend and God bless you!

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    • By Berta
      http://community.hadit.com/topic/69387-poopsy-woopsy/
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      “I.  Retroactive Benefits
       
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      "FINDINGS OF FACT 1. The Veteran did not have service in the Republic of Vietnam and is, therefore, not a Nehmer class member. 2. The current effective date of November 1, 2008, represents the first day of the month in which the Veteran's death occurred where the appellant's claim was received within one year after the date of his death."
      But it did contain a good explanation of Retro payments instead of "accrued" benefits, that Nehmer Class action members, as survivors, could expect even if an accrued claim had never been filed for AO IHD. 
      And just to add....many of us Nehmer Class action survivors were also Footnote One claimants.
      I have explained Footnote One here Many times since 2010 and added Rick Spataro's emails to me on it ( NVLSP Head AO lawyer) and all of that that is easily searchable here ( I hope) and was the most important and  unique aspect of Nehmer 2010.
      Agent Orange is still harming and killing our nation's veterans. But only those vets or their survivors as defined in the above citation from the BVA and in the  the Nehmer Court Orders are Nehmer class action members.
       
       
       
       
       
       
    • By Andyman73
      Got some good news to share.  Some of you may know, or recall, that I had written elsewhere on here, that my Dad(Nam combat, 24 yr career retired, 60% SCD) and I don't exactly communicate very well.  The grapevine tells me that it's my own lack of communication skills are the problem.  Anyway, while updating my folks after yesterday's 6 month foster child case review court session, Dad went off topic to let me know that the VA has opened an AO claim for/on him.  Said they initiated it(???)and that he has a bunch of appointments scheduled over the next few months.  I was quite surprised that he wanted to tell me about that...since I'm usually the last to know, and my wife is usually the one telling me.
      So...is there anything I should tell him to tell them?  I don't know too much about his overall health, beyond his Nam related back injury.  Thanks.
      Andy
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    • How to get your questions answered...


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      Tips on posting on the forums.

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      Examples:

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      I was diagnosed with apnea in service and received a CPAP machine but claim was denied in 2008. Should I refile?



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      I was involved in traumatic incident on base in 1974 and have had nightmares ever since, but I did not go to mental health while enlisted. How can I get help?



      This gives members a starting point to ask clarifying questions like “Can you post the Reasons for Denial from your claim?” etc.

      Note:

      Your firsts posts on the board may be delayed before they show up, as they are reviewed, this process does not take long and the review requirement will be removed usually by the 6th post, though we reserve the right to keep anyone on moderator preview.

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