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retiredat44

I got a letter asking if I wanted to participate in pain control study at VA

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I got a letter asking if I wanted to participate in pain control study at VA. I have done these clinics, meeting studies. I was so desperate I volunteered for them over many years at hospitals and the VA. Never helped, and if they are trying to try to get you off meds and you already tried everything and live in hell because of intractable unbearable pain, you cannot function and the last thing you need is talk talk, talk and more pain. I have been through so much! so much! I knew that when they sent me this another ph.d candidate is probably doing a study. The VA may also be trying to see how many people it can take meds away and see if they really need them. Now they offer money. But, it's not worth any amount to have someone seeing if they can take your meds. obviously we our on an open database or taking narcotics. And the VA would love to see who will negotiate pain relief. Pay you some money.. and have head doctors try to find out if you really need pain relief. Been through it all. Suffere din hell and have had people that could care less about other suffering talking meds away. With spinal disease necrotizing pancreatitis, liver disease, yet the pain doctor still try to change my pain meds, it took 20 years of trials to see what works and al it takes is one really bad doctor to make sure every day is even worse. And once they take meds away, only god can bring some back to you for relief. Only thing left is suffering or death. The do not reason with sick patients at the va. I would bet my life that if these pain doctors and the rest had what I had, lost everything and spent 1/2 life sick in bed they would have shove a gun in their mouth. yet they have the ordasity to take people's meds that need them to live. That study called me and I said no way good bye, been there done that, al it's got me was more suffering for helping studies. BTW, I remember a jerk who was in the program who went t the meetings. I had just spent 6 months in the hospitals on a feeding tube and in a wheel chair living in a hospital for 1/2 of one year, then nurses at my home. I had no muscles and could not walk, or eat al that time and live on dilauded for extreme pain. This jerk was at the pain clinic study because he was sad because he could golf as much any more. Boo-hoo. How about spending your life in bed with a dying pancreas and the first half or your life being told it's in your head and you are just a drug seeker, then the surgeons find out your pancreas is to far gone and they cannot fix it so you will die from it. The you sit with assholes like this who are bummed because of a bad should which messes up their golf game, and they look at you like you are the xxxxxxx. That is what a pain clinic is like. Everyone that have a problem tying shoes of not golfing so good think their problem is a prioity over those that are dying with horrific diseases. Good luck with attending these bogus clinics. let them take your meds and have to talk to head doctors so they can weed out everyone to them is faking it for drugs. (sarcasm)

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Retiredat44, I know where you are coming from.  I was retired at 25.  I am saddened by the fact that they did not find your pancreas was messed up before it was too late.  I take an anticonvulsant and narcotics for pain myself.  One day I did put a gun in my mouth, fortunately there was only one bullet in the cylinder when I spun it.  After I heard the hammer fall I decided that I could go on another day.  Keep us posted on what is going on.  People do read what you write and care about what you have to say.  

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Thanx..... I do worry about others and I don't want to stop someone who hasn't been through al this,,, but I kind of put people in pain in 2 classes,,, just for this comment only.... one time... if it is possible that another method may help you, then try it, but if you know you are in deep shit and no amount of psycho babble is going to help, then there is no point in listening to b.s.…. thinking about a quiet place with a running stream is not going to kill the pain that is driving a person mad.... notice how the people who are not sick are giving advice to those that are very sick..... wtf....?

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Yep, they sent me to a pain specialist one time who hooked me up to a stress meter.  I started playing with the machine stressing and destressing with relaxation and mediation having a grand time watching the stress level rise and fall.  After trying to find out what was wrong with their machine the nurse asked me if I was doing that.  When I told her I was she said that if I could do that I was way beyond her help.  Some of these people think we are not in so much pain because we learn to live with it.

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