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Muscular Dystrophy


Kevin Stevenson

Question

I found out after my mom's passing, that she had a rare type of muscular dystrophy called Oculopharyngeal. Later after I exited the military, I had difficulties seeing because my eyelids were drooping. I had always told soldiers that I were stationed with that I didn't know why. However, I then began having difficulties in swallowing so I went to the VA's doctor and told them that my mom may have had the same thing I am suffering from. She had me do a genetic testing which came back as positive. My question is; Is there anything I can do to claim this as a disability? I didn't know about this disease while I was in the military so there is no way that I knew anything about claiming I as a disability. I don't know if it progressed while I was in the military and I don't know if I have a chance to claim this disease now. So any advice you can provide would be helpful. Thank you in advance.

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Probably not.  "Congenitial" defects that did not have an etiology in service wont be service connected except to the extent that your condition(s) were "aggravated" by military service.  

 

Of course, I dont know the extent, if any, of "aggravation" of your condition in military service.  It wouldnt even matter if I did know!!  

As always, you would need a doc statement to the effect that (an event in military service) aggravated your congenital condition for sc.  I have no idea if a doc will provide such a statement, its probably dependent on the facts in your case.  

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Kevin,

So a couple of things you could do.  Were you seen for any of the symptoms this disease is causing?  2nd what are you rated for on disability?  Does this condition aggravate those condition/s?

If you can link it to other things you were seen for in service this could help.  If not the a secondary condition is probably what you want to go after.  How is Oculopharyngeal making (disability worse)?

So I am seeing a few things on the disability rating of 60 percent and it seems this also depends on the area and what is affected.  I think you have some research to do to find out how the VA rates this.

Edited by shrekthetank1 (see edit history)
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Shrekthetank1,

I am rated at 80% as of right now. I also have been diagnosed with insulin dependent type 1 diabetes. This disease affects my eating and sometimes my drinking of any beverage. It is very hard for me to maintain a normal A1C because my glucose level is either too high but mostly it is too low. My diabetes doctor has now made me wear Dexcom which is a continuous glucose monitoring device. When I went to the Ear, Nose and Throat specialist, he told me that the condition has gotten worse. My vision is terrible because the eyelids are severely droopy. They have even tried surgery to raise the eyelids so I could see better but it didn't work because the muscles in the eyelid were not strong enough to sustain it. I'm not sure if this is enough information for you but if there is anything else you may need from me just let me know. Thank you in advance.

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So I would search the forums here at hadit to show how to show how your service connected condition affects your MD. You need an IMO and a nexus from a doctor.  

Also if you are rated for any one condition at 60% you might be able to get TDUI. If you are unemployable.  

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