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GBArmy

Meniere's Syndrome

Question

I'm scheduled for some testing which I believe will include testing for Meniere's Syndrome (MS). I read many entries here and I am not sure if Tinnitus is secondary to MS, or the other way around. I believe that Berta said MS  can be secondary to Tinnitus. I am already s-c for tinnitus. I am curious if anyone has had experience with the exam and what is done. My rack of testing is scheduled for 4 hours; so I don't have any idea how long the MD part might take. Any input on what goes on would be appreciated.

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36 minutes ago, GBArmy said:

Meniere's Syndrome (MS).

Please be careful short handing MS as meniere's disease. It will cause confusion for some folks. MS is much worse than meniere's.

There are like 12 types of Vertigo-causing conditions. One for example is migraine related vertigo with or without headaches. For rating purposes what you need is straight forward, for treatment purposes not so much.

The MR21 states if you have Hearing Loss, Tinnitus and Vertigo then you should be rated as Menieres if it gives the highest rating compared to the three individually. It usually does.

To get 100% meniere's you have to have a cerebral gait, basically the "drunk walk" plus the other stuff under the rating.

You have to have events of Vertigo several times a month for the lowest rating, several times a week for the highest rating. This includes when you roll over in bed and get a swimming sensation in your head.

I am dealing with this right now. My situation is complicated and I am working the steps to get my HL SC'd back to 2013 through a CUE. I have an SC for Vertigo and Tinnitus and HL at 0% as of 2019. I had all three in 2013 but the VA hosed me over so now I have to fight them over it. It is worth over 100K to me if I get this EED'd back to 2013. I also have an SA claim that will do about the same thing hehehehe working them all. I want my freaking money!!!

You will probably have to be tested using a VNG...which amounts to being waterboarded through the ear!!! alternatively they can use blasts of warm and cold air into your ears alternating. You get to do cognitive things during this time like counting by 17's or telling them how many states names start with R, W, N, F, A, etc.

If you do the  full VNG you will be place in a rotating chair, with dark goggles on, in a chamber. they will spin you in different directions at different speeds while flashing colored lights and lines in front of your eyes. They will record your eyes ability to track those things.

The first one I did I threw up 5 times. This last one only 3 times...improvement?

The funny thing about this whole process is it is to prove that your ears are working properly.

If the mechanics of your ears, your vestibular system, are working right, then your cause of Meniere's is something other than that system.

The Dr can print you a copy of the results on the spot. I suggest you get them. According to mine, the can do this for "training" but they cannot (by regulation) provide them at a later date, so if they fail to get into your medical record you are HOSED...I am dealing with this very issue on my VNG from 2013.

53 minutes ago, GBArmy said:

My rack of testing is scheduled for 4 hours; so I don't have any idea how long the MD part might take.

That is the VNG battery 4 hours is normal. They will also do a bunch of standing, stepping, walking type tests. The Audiologist is there doing all the tests as required by regulation it must be an Audiologist specifically certified in this area of Audiology. They must have a state license and cert in the sub-specialty.

At my VAMC they have the Dizzy Board, that is the real name, and after the tests the board reviews and determines the next medical steps. You should get a diagnosis of vertigo out of the tests, just not a specific cause. You are unlikely to get them to say you have meniere's at this junction. If you have HL and Tinnitus, then take the diagnosis and apply for vertigo and specifically call out Menieres.

Make sure they document your drunk walk. if you have buddy statements that say you stagger and swerve for no reason all the time, all the better for you.

BE clear, there are other causes of Meniere's, for rating purposes and your mention of Tinnitus, I only talked about those components.

Some say meniere's is a catchall diagnosis, and for rating purposes that is kinda true as outlined, but there are specific tests and procedures for the various causes. Some include brain surgery but that option has no guarantee of fixing the problem so it is a sketchy choice to me.

By some chance do you smoke or have lung/breathing/oxygen problems? if so monitor your vertigo events to when you are having breathing problems.

Do you have headaches or a constant headache? you don't have to think of them as migraines for them to medically be migraines.

hope that helps... definitely read the DBQ and the law on this issue.


 

 

 

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