Berta: I spoke with the private doctor that was giving my dad the immunotherapy trial (very nice guy. He has worked with the VA before and is now in private practice) When my dad was taken off the immunotherapy trial after the first dose showed no results, this doctor said he needed to start chemo immediately. We made the consult request, through the va primary care, but nobody would approve it. I have requested the medical records from this doctor.
I also found out that another patient in the trial who was taken off at the same time as my father for the same lack of improvement. This patient was able to get on Medicare B, got chemo and is now not only still alive, but improving.
The VA screwed up my father's medicare B when he required emergency surgery to repair an aortic dissection in late 2016. The VA hospital referred him to St Lukes and provided paperwork that they would pay the entire bill. This paperwork got held up so Med B automatically kicked in and my parent's got sent a bill for the remaining balance. The VA said in order for them to pay the 100%, my father would have to reject Med B...which apparently rejects it not just for one procedure, but you can't use it until the next enrollment period and then have to be approved again.
Therefore, my father was not having success with immunotherapy, The VA screwed up his medicare B, refused to provide him chemo treatment at the VA or through the choice program to a private doctor already familiar with his case and who strongly recommended it.