marie2017

I am the guardian of the now deceased veteran's daughter. My daughter is 2 years old. He passed in September of 2019. He was diagnosed with Pageants disease in 2/2010. He decided to pursue his claim again because of our baby girl. He opened it back up in June 2017. Even after getting a nexus letter that was well supported and documented the VA denied his claim over and over again. Unfortunately, he eventually developed soft connective sarcoma which was for sure on the presumptive list. His VA exam was granted with 100 total disabled nexus letter. He still was denied early last year. He was just devastated. I am pursuing the claim but did not handle his burial nor was I involved. I don't even recognize the provider nor was his cause of death accurate. The closest family member only knew he had developed cancer and that he had the pageants disease. The death certificate is not the accurate cause of death. I was so pissed. In November based on my awareness and documentation I provided they sought the second opinion of the VA provider that treated him and verified his condition of the development of the soft connective tissue of the lungs and agreed that was the cause of death. I was just waiting on my award letter. Now, after 5 months into this claim, the VA last week, just asked me to provide treatment records. I could have given them the facilities information in September. They stated to me that he had a history of osteosarcoma and was continually denied. I know this is an automatic no on the presumptive list. I am a 100 percent sure he did not have osteosarcoma. I don't even know how they can lie like this. I cant wait until they get the records. I am now requesting to be a substitute so I can see exactly what was submitted in the past by him. I know that I researched that only 0.01 percent of people that have pageant disease develop osteosarcoma. That is a crazy stat but one in my favor. I know that he didn't and I cant wait to prove it. Im just concerned now that even though the death certificate cause is wrong and I still could win my case based on the soft tissue sarcoma being the contributory cause to this bogus cause of death, could it alter the 100 total disabled rating he was given at his VA exam?