We are making a push to get as many CML Vets together as possible. There are a lot of indicators that CML is much more prevalent among Vietnam Vets than the population in general, and we must make a concerted effort to have all the Leukemias on the presumptive list. As closely related as they are, it is really silly that CML is out there almost by itself as not included on the list. I have several of the appeals that have been approved; including for NOK after the veteran died. We need as many CML vets as possible together for this and make the push to find doctors who will state there is a link, congressmen pushing for addition to the list, etc. But it is numbers that does it. There is a Facebook group called "Vietnam Vets with CML and their families". You will find links to some of the VA appeals decisions, why some were granted and more denied. This is terribly important. My VA onc finally admitted to me that there are a LOT of Vietnam Vets with CML.Now that there are drugs that work for most of us to keep us alive, there will be more and more. VA had it good in the 1990s as the older VietVets started turning 50-60 -- they all died. Now we are hanging around and we have to make our voices heard. All those widows and NOK who were denied back then should be getting Nehmer letters; otherwise they should file. AND I am convinced that the CHILDREN of Vietnam Vets who have come down with CML have a claim as well. The Australian study that showed a positive link to children of Vietnam Vets was pressured and repudiated, but I STILL believe the original results were good.
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TomLeo
We are making a push to get as many CML Vets together as possible. There are a lot of indicators that CML is much more prevalent among Vietnam Vets than the population in general, and we must make a concerted effort to have all the Leukemias on the presumptive list. As closely related as they are, it is really silly that CML is out there almost by itself as not included on the list. I have several of the appeals that have been approved; including for NOK after the veteran died. We need as many CML vets as possible together for this and make the push to find doctors who will state there is a link, congressmen pushing for addition to the list, etc. But it is numbers that does it. There is a Facebook group called "Vietnam Vets with CML and their families". You will find links to some of the VA appeals decisions, why some were granted and more denied. This is terribly important. My VA onc finally admitted to me that there are a LOT of Vietnam Vets with CML.Now that there are drugs that work for most of us to keep us alive, there will be more and more. VA had it good in the 1990s as the older VietVets started turning 50-60 -- they all died. Now we are hanging around and we have to make our voices heard. All those widows and NOK who were denied back then should be getting Nehmer letters; otherwise they should file. AND I am convinced that the CHILDREN of Vietnam Vets who have come down with CML have a claim as well. The Australian study that showed a positive link to children of Vietnam Vets was pressured and repudiated, but I STILL believe the original results were good.
VA Claim for CML 060410.pdf
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