I haven't gotten the actual VA letter yet, and the claim is sitting at "pending decision approval" right now, but obviously I need to start preparing immediately. Here are the details:
I was diagnosed with Reactive Arthritis in service. Left knee and toes swelled up, had to use crutches because of foot pain and severely limited range of motion, etc, etc. Started taking Humira and symptoms went away. Upon separation I was granted a 60% rating for the arthritis, as well as a 20% (splenectomy), and 3 10% ratings (Jaw scar, residuals of fractured mandible, tinnitus). Combined rating was 80%.
After separating I continued with my active duty humira prescription, because I separated with 6 months of healthcare. About 3-5 months after my Humira supply ran out, I had another arthritis attack, except this time it was for eye inflammation (iritis or uveitis) that lead to severe photophobia. I woke up and my eyes were already in pain, if I looked at any sources of light (room had blackout curtains) I would experience shooting pain and had to close my eyes immediately. It was also a lot more sudden than the first attack. I went to bed with my eyes being irritated but not in pain, woke up to terrible pain. In contrast, it took several weeks for the arthritis to progress to its peak, so I assumed I would have time to go to the VA if symptoms started developing again, which is why I didn't get an appointment with the VA for a new Humira prescription. In addition, reactive arthritis can be a one-time thing, and it hadn't been long enough that you could say whether it was one-time or chronic.
At any rate, it took some intensive care and weeks for the symptoms to mostly subside, though it took a few months to fully subside. This attack was more incapacitating than the first one. While the first one prevented most physical activity my job was a desk job and I was still able to work. By contrast, with the photophobia I couldn't operate a computer for weeks. I was mostly stuck at home doing nothing. Based on how my condition was rated (should be 5009, rated as analogous to 5002, rheumatoid arthritis). I felt I could make the case that it qualified for the 100% criteria: "With constitutional manifestations associated with active joint involvement, totally incapacitating". So I applied for an increase on that.
The other relevant increase I applied for was for the 10% rating on my jaw scar. While it hadn't gotten worse, I realized I should qualify for two of the criteria for characteristics of disfigurement "wider than 1/4 inch", and "adhered to the underlying tissue". So I applied for an increase, expecting a 30% rating.
I also applied for a new rating because I take immunosupressants "constantly or near constantly" to treat my arthritis. After filing I realized I may or may not get this since it might be considered pyramiding, though I'm not sure. The rating is for how it suppresses your immune system, but I'm still learning so I don't know whether this would be pyramiding or not. Would this be in your opinion?
At any rate, I received a letter from the DAV saying that the VA actually plan to decrease my ratings. They're proposing a decrease to 10% for the arthritis, and a decrease to 0% for the jaw scar. I have yet to receive the VA letter, and the current status on eBenefits is "pending decision approval", though around the time the letter is dated it was at "preparation for notification". I'm assuming that's when the DAV got notice what their plans were. The letter doesn't say anything about the request for the immunosuppressants I'm taking. I'm not sure if they hadn't made a decision yet or if they had and that letter was only notifying me of possible decreases. I'm planning to call the DAV for more details on Monday.
The decreases are really confusing me. I could see being denied an increase on the arthritis rating since I was only "totally incapacitated" for maybe a week or so, but a decrease makes no sense, especially a 10% rating. For 10% they would have to be rating it for chronic residuals and not as an active process. The minimum for an active process is 20%. What could be their justification for a decrease, especially that severe? At the moment I'm not experiencing any symptoms, but 1) Reactive arthritis is periodic and the severity over time varies greatly -AND- 2) I'm currently taking Humira, so any reaction is being suppressed.
As for the jaw scar I'm very confused how they could justify a decrease. It hasn't changed and was rated at 10% already. So what are they thinking here?
I do have some ideas for what they're thinking:
- They requested DBQs for Lupus and other auto-immune disorders, and looking at my original award letter it looks like my rating is based on the criteria for lupus, though the claim is for reactive arthritis and this would fall under DC 5009, Arthritis, other. Under the different criteria for lupus it probably wouldn't qualify for 100% because ratings are based more on frequency. In fact, lupus has a 10% rating for " Exacerbations once or twice a year or symptomatic during thepast 2 years".This might explain the 10% proposal, but if so they're using the wrong criteria. And also, why did I get a 60% rating in the first place when my initial rating was for one (very drawn out) exacerbation?
- For the scar, I'm really confused. I don't remember the examiner even checking to see whether my scar was adhered to the underlying tissue. The exam was mostly centered around the arthritis discussion. 0% would have to mean she measured it at less than 1/4 inch and that it was marked as not adhered. But I don't believe she checked for adherence, and I already had another evaluation that confirmed wider than 1/4 inch. And she definitely didn't measure my scar across it's length so you couldn't say less than 1/4 at the widest.
Note that neither of these ratings are protected ratings, so I understand it requires less for a decrease. Still, what the hell are they thinking, and what should I do in preparation for a response? Here's what I'm thinking so far:
- Schedule an appointment with rheumatology to fill out the correct DBQ. Under the correct criteria it should be 60% at a minimum, and hopefully she decides it qualifies for 100%. Since it would be an exam done by a rheumatologist under the *correct* DBQ, compared to the exam by the C&P doctor using the wrong one, this should outweigh/overrule the 10% rating from what they have already.
- Have the scar re-measured, maybe by my primary care provider. Two exams showing wider than 1/4 inch should sufice.
What are your thoughts?
What else should I do to get ready?
Would I have a basis for a CUE since it appears I was evaluated under lupus instead of under DC 6350 for Lupus instead of under DC 5009 for Arthritis?
Would the recent Shinseki court case regarding how the VA cannot consider the effects of medication unless those effects are explicitly considered in the DC be relevant in this case? The effects of medicine aren't considered under 5002, though the fact that I'm fine at the moment might be their basis for the 10% rating.
Question
dsteele713
I haven't gotten the actual VA letter yet, and the claim is sitting at "pending decision approval" right now, but obviously I need to start preparing immediately. Here are the details:
I was diagnosed with Reactive Arthritis in service. Left knee and toes swelled up, had to use crutches because of foot pain and severely limited range of motion, etc, etc. Started taking Humira and symptoms went away. Upon separation I was granted a 60% rating for the arthritis, as well as a 20% (splenectomy), and 3 10% ratings (Jaw scar, residuals of fractured mandible, tinnitus). Combined rating was 80%.
After separating I continued with my active duty humira prescription, because I separated with 6 months of healthcare. About 3-5 months after my Humira supply ran out, I had another arthritis attack, except this time it was for eye inflammation (iritis or uveitis) that lead to severe photophobia. I woke up and my eyes were already in pain, if I looked at any sources of light (room had blackout curtains) I would experience shooting pain and had to close my eyes immediately. It was also a lot more sudden than the first attack. I went to bed with my eyes being irritated but not in pain, woke up to terrible pain. In contrast, it took several weeks for the arthritis to progress to its peak, so I assumed I would have time to go to the VA if symptoms started developing again, which is why I didn't get an appointment with the VA for a new Humira prescription. In addition, reactive arthritis can be a one-time thing, and it hadn't been long enough that you could say whether it was one-time or chronic.
At any rate, it took some intensive care and weeks for the symptoms to mostly subside, though it took a few months to fully subside. This attack was more incapacitating than the first one. While the first one prevented most physical activity my job was a desk job and I was still able to work. By contrast, with the photophobia I couldn't operate a computer for weeks. I was mostly stuck at home doing nothing. Based on how my condition was rated (should be 5009, rated as analogous to 5002, rheumatoid arthritis). I felt I could make the case that it qualified for the 100% criteria: "With constitutional manifestations associated with active joint involvement, totally incapacitating". So I applied for an increase on that.
The other relevant increase I applied for was for the 10% rating on my jaw scar. While it hadn't gotten worse, I realized I should qualify for two of the criteria for characteristics of disfigurement "wider than 1/4 inch", and "adhered to the underlying tissue". So I applied for an increase, expecting a 30% rating.
I also applied for a new rating because I take immunosupressants "constantly or near constantly" to treat my arthritis. After filing I realized I may or may not get this since it might be considered pyramiding, though I'm not sure. The rating is for how it suppresses your immune system, but I'm still learning so I don't know whether this would be pyramiding or not. Would this be in your opinion?
At any rate, I received a letter from the DAV saying that the VA actually plan to decrease my ratings. They're proposing a decrease to 10% for the arthritis, and a decrease to 0% for the jaw scar. I have yet to receive the VA letter, and the current status on eBenefits is "pending decision approval", though around the time the letter is dated it was at "preparation for notification". I'm assuming that's when the DAV got notice what their plans were. The letter doesn't say anything about the request for the immunosuppressants I'm taking. I'm not sure if they hadn't made a decision yet or if they had and that letter was only notifying me of possible decreases. I'm planning to call the DAV for more details on Monday.
The decreases are really confusing me. I could see being denied an increase on the arthritis rating since I was only "totally incapacitated" for maybe a week or so, but a decrease makes no sense, especially a 10% rating. For 10% they would have to be rating it for chronic residuals and not as an active process. The minimum for an active process is 20%. What could be their justification for a decrease, especially that severe? At the moment I'm not experiencing any symptoms, but 1) Reactive arthritis is periodic and the severity over time varies greatly -AND- 2) I'm currently taking Humira, so any reaction is being suppressed.
As for the jaw scar I'm very confused how they could justify a decrease. It hasn't changed and was rated at 10% already. So what are they thinking here?
I do have some ideas for what they're thinking:
- They requested DBQs for Lupus and other auto-immune disorders, and looking at my original award letter it looks like my rating is based on the criteria for lupus, though the claim is for reactive arthritis and this would fall under DC 5009, Arthritis, other. Under the different criteria for lupus it probably wouldn't qualify for 100% because ratings are based more on frequency. In fact, lupus has a 10% rating for " Exacerbations once or twice a year or symptomatic during thepast 2 years".This might explain the 10% proposal, but if so they're using the wrong criteria. And also, why did I get a 60% rating in the first place when my initial rating was for one (very drawn out) exacerbation?
- For the scar, I'm really confused. I don't remember the examiner even checking to see whether my scar was adhered to the underlying tissue. The exam was mostly centered around the arthritis discussion. 0% would have to mean she measured it at less than 1/4 inch and that it was marked as not adhered. But I don't believe she checked for adherence, and I already had another evaluation that confirmed wider than 1/4 inch. And she definitely didn't measure my scar across it's length so you couldn't say less than 1/4 at the widest.
Note that neither of these ratings are protected ratings, so I understand it requires less for a decrease. Still, what the hell are they thinking, and what should I do in preparation for a response? Here's what I'm thinking so far:
- Schedule an appointment with rheumatology to fill out the correct DBQ. Under the correct criteria it should be 60% at a minimum, and hopefully she decides it qualifies for 100%. Since it would be an exam done by a rheumatologist under the *correct* DBQ, compared to the exam by the C&P doctor using the wrong one, this should outweigh/overrule the 10% rating from what they have already.
- Have the scar re-measured, maybe by my primary care provider. Two exams showing wider than 1/4 inch should sufice.
What are your thoughts?
What else should I do to get ready?
Would I have a basis for a CUE since it appears I was evaluated under lupus instead of under DC 6350 for Lupus instead of under DC 5009 for Arthritis?
Would the recent Shinseki court case regarding how the VA cannot consider the effects of medication unless those effects are explicitly considered in the DC be relevant in this case? The effects of medicine aren't considered under 5002, though the fact that I'm fine at the moment might be their basis for the 10% rating.
Edited by dsteele713Forgot to ask about CUE
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broncovet
First, you will have to wait for the letter from VA, but it does give you some time. You said your rating was "not protected", but lots of people dont even know what that is. Did you, for exam
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