The Time Has Come To Pass The Als Registry Act!

[ZenArcher]

The Time Has Come to Pass the ALS Registry Act!

We have great news...the Senate is expected to vote on legislation that includes the ALS Registry Act as soon as this week! This is what we all have been working for. And it means that it's absolutely critical that you contact your Senators and urge them to join us in our fight for a treatment and cure.

Late yesterday, Senate Majority Leader Harry Reid introduced the Advancing America's Priorities Act (S. 3297). The bill includes the ALS Registry Act as well as other legislation that has been blocked from consideration by Senator Tom Coburn. For the past several months, we have worked closely with Senator Reid behind the scenes to move the bill forward and now we have an opportunity to take the next step and pass the ALS Registry Act in the Senate!

This is the opportunity we have been working toward. And it may be our last and only chance to pass the bill this year, so we need your help TODAY.

A sample letter you can send to your Senators is available on the Advocacy Action Center (http://capwiz.com/alsa/home/) of our website. Please send the letter today and ask your Senators to vote for S. 3297, the Advancing America's Priorities Act, which includes the ALS Registry Act. Let them know that by voting for this critical legislation, they can help us find a treatment and cure for Lou Gehrig's disease. People with ALS don't have time to wait!

And please remember, only contact the Senators representing your state, for Senators are most responsive to their own constituents. If you don't know the names of your Senators, don't worry, the Advocacy Action Center will identify them for you.

After you send your letter, please forward this alert to your entire address book and tell your family, friends and colleagues to do so as well. We need as many people as possible to contact their Senators in support of S. 3297.

We will keep you up-to-date as the bill moves forward and the vote is scheduled. So please keep an eye out for our Action Alerts. We anticipate that several votes may take place and we will be asking you to reach out to your Senators before every vote!

We want to thank everyone in advance for their outreach. Together, we can pass the ALS Registry Act!

If you have any questions or would like additional information about this Action Alert, please contact the Advocacy Department at advocacy@alsa-national.org or toll-free at 1-877-444-ALSA.

THANK YOU!

[Berta]

Yes -this is great news so far------

Last night at SVR radio we discussed two other pending bills on other types of disabilities-

the important thing to remember is that-

vets are a few clicks away from their State Senators via email at the VA web site- and certainly can call or write to them urging them to support any type of vets legislation-

and also we have the ability to help shape the regulations themselves- public comment at the Federal Registruy web site is read and considered by the VA.

WHat bothers me the most is how the VA will define those specific GW veterans as to where and when and how they were determined to have gotten ALS due to their service.

The AO Registry and the SHAD situation are two examples of how long it can take to really define and cover all affected veterans when a reg like this is proposed.

Still-this is a great start and veterans can easily ask their Senators to support this bill-

Thanks for keeping this in our minds here Zen Archer-and thanks for your advocacy on this important issue!

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