I just found this site, after several years of frustration. I'm hoping someone out there has some common ground here. My husband served with 2ACR in 1991. Our son was born 10 months after his arrival home. He's now 17. As a baby, he seemed to have strange "seizures" that were never diagnosed, and lung problems. About age 3, he "outgrew" it all, but I recall seeing then in the Stars and Stripes an article about possible problems with DS kids, esp. their lungs and 'strange neurological problems'. Of course, I cannot find it now.
About age 13, he started to have problems with pain in his legs. Doctors first passed it off as "growing pains"; soon after it developed into sudden weakness--he would just be walking down the hall at school, home, anywhere, and suddenly fall down, his legs too weak to hold him up. He endured years of poking, prodding, million dollar workups--no diagnosis. EEGs "normal"; muscle studies "normal". Blood tests normal. Once again, the problem seemed to let up, gave him some peace. He kept his canes around just in case though.
Twice this fall he has been hauled off the field at his school (he's in the marching band) because his legs stopped working again. In my gut, I think it's DWS but no one will even take me seriously when I mention it.
My husband died when he was almost 4 in a car accident, leaving me with him and his 5 siblings to raise. I have no idea what condition he'd be in now if he were alive, but a close friend in the same unit who was with him there developed schizophrenia at age 48 (normally onset for such a thing is in late teens/early 20s). He's 100% disabled. Does anyone have anything similar to report? Are there any studies of family members born after the war being done?
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dottiek
I just found this site, after several years of frustration. I'm hoping someone out there has some common ground here. My husband served with 2ACR in 1991. Our son was born 10 months after his arrival home. He's now 17. As a baby, he seemed to have strange "seizures" that were never diagnosed, and lung problems. About age 3, he "outgrew" it all, but I recall seeing then in the Stars and Stripes an article about possible problems with DS kids, esp. their lungs and 'strange neurological problems'. Of course, I cannot find it now.
About age 13, he started to have problems with pain in his legs. Doctors first passed it off as "growing pains"; soon after it developed into sudden weakness--he would just be walking down the hall at school, home, anywhere, and suddenly fall down, his legs too weak to hold him up. He endured years of poking, prodding, million dollar workups--no diagnosis. EEGs "normal"; muscle studies "normal". Blood tests normal. Once again, the problem seemed to let up, gave him some peace. He kept his canes around just in case though.
Twice this fall he has been hauled off the field at his school (he's in the marching band) because his legs stopped working again. In my gut, I think it's DWS but no one will even take me seriously when I mention it.
My husband died when he was almost 4 in a car accident, leaving me with him and his 5 siblings to raise. I have no idea what condition he'd be in now if he were alive, but a close friend in the same unit who was with him there developed schizophrenia at age 48 (normally onset for such a thing is in late teens/early 20s). He's 100% disabled. Does anyone have anything similar to report? Are there any studies of family members born after the war being done?
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