Myasthenia Gravis And Agent Orange

[zoe]

hello to all

i was just diagnosed with myasthenia gravis and would like to know if there is a valid relationship to agent orange.

i also have ischemic heart disease and have had a double bypass done by the va.

i also have prostate cancer and the surgery was postponed untill they get the myasthenia gravis under control, because it is severely effecting my breathing.

any feedback would be greatly appreciated. if i do not get back to you right off, it is because i will be admitted to the boston va on monday to get my breathing regulated.

thanks to all

peter ak(zoe)

[Berta]

The info Buck posted is from:

https://www.va.gov/disability/eligibility/hazardous-materials-exposure/agent-orange/

However, as I have noticed  lately the VA parses their info at their web site,- and they forgot to mention the Thailand AO directive in the article.

The recent poster is named Hoytt Rummels= maybe someone can fix this confusing thread.

Buck stated:

"SO THIS MEDICAL SPECIALIST'' WAS NOT GOOD ENOUGH TO RENDER HIS MEDICAL  OPINION?  THAT MG WAS GREATER THAN 50% IT WAS CAUSED BY AGENT ORANGE?" 

Trying to get SC for AO exposure is very difficult if the disability is not an AO presumptive, or in this case, the disability is not a Chronic presumptive , without exposure to AO.

It can be done but it is VERY difficult!

I have posted here over the years those cases whereby the veteran was proven exposed to AO but their disability is not an AO presumptive one.

It takes a lot more than a doctor stating "more than likely".

 

 

Edited February 24, 2020 by Berta

[Berta]

In the post 10 years old by "ZOE", we never learned if they were exposed to AO, and since then the presumptive list has grown as well, as the addition of Blue Water Navy 12 mile limit veterans, who now have the same equity as all other AO veterans.

I expected a lot of Blue Water Navy AO claims questions to be at hadit since those regulations became law last summer. The VA is certainly working on any BWN claim, whereby the veteran had been denied in the past for an AO presumptive but has since proven they were in the 12 mile limit-

those vets hopefully will get a proper decision and retro- such as one BWN vet we have here at hadit.

But I bet THOUSANDS of BWN vets and/or their survivors , still have no idea at all of the Blue Water situation under Nehmer.

The average Vietnam Vet these days or their surviving spouse would probably be in their 70s, ny now and may not ever use a PC or google and ever week I slowly receive news of the BWN AO  Victory from newspapers scattered over the USA, news that often appears in small newspapers instead of the main ones.

Sec.Wilkie mentioned this extraordinary victory last summer at Fox News and so far I have never seen it mentioned on the Prime news channels at all.

VA. in the past ( 2010) was also supposed to be contacting any IHD, Parkinsons or Hairy Cell B vet  or their survivor, whose past rating sheets  revealed a AO ,that was  NSC then , but the Veteran had served in Vietnam.And ostensibly contacted the veteran about Nehmer 2010.

They forgot some vets here as well as me a widow of an AO vet.

Only because we were aware of the new 2010 AO  Regulations were we able to succeed with our claims, and most of us had a NVLSP contact lawyer checking over our retro awards.

My new VBM has not arrived yet and that too will have BWN AO info in it- but I have already been in contact with NVLSP ( they won Nehmer) and the most important info in this new VBM ,  is what I have already posted here in the AO forum as to Deck Logs and the map of the 12 Mile coordinates.

The VA ,in my opinion after dealing with the since 1981,wants veterans and their spouses/survivors, to always remain in the dark about any new issues that would provide compensation or higher ratings ,to many.

Unfortunately those who represent us as VSO , NSO, vet reps etc....often do not have a clue on AO as well as many other types of VA case law we discuss here.

My lousy state reps had never heard of the well established Nehmer -when I went to them in 2003. 

I donated an additional VBM I bought to them so vets could peruse it but found it later hidden in an upstairs office most of the VAMC PTs could not get to and none of their reps ever even opened it.

There is much good advice here at hadit, but some of it needs taking the time to get the full 9 yards, by using the search feature here and doing some research via google, BVA, CAVC etc. to  properly give the vet the info they need.

And then hope they take our advice. Some never return.

 

 

 

 

 

 

Edited February 24, 2020 by Berta

[Berta]

Can any mod fixed this thread?

Otherwise the recent new member will not find the recent replies.

[Mary]

On 2/23/2020 at 3:29 PM, Berta said:

This thread is out or order. The recent new member Hoytt Runnells  stated:

"I even included in my claim copies of court cases (VA) where claims were approved yet they still denied it."

Where were you exposed to Agent Orange and when?

Can you link us to those court cases  that were approved for AO exposure causing myasthenia gravis?

I have been involved with the AO issue since 1991, AO Settlement fund 1992, my husband, me as his widow 1993, and also am a widow due to his two AO conditions at death.

I am surprised that VA has service connected myasthenia gravis

as due to AO exposure.

If you give us the Cases or links it can help us help you as well as help others.

 

 

https://www.va.gov/vetapp15/Files4/1534590.txt

[Berta]

This thread is really messed up-

Mary, is that BVA case your Award? If So CONGRATS!!!!!!

[TerryR]

 My dad was a retired fromer Marine he spent two tours in Vietnam and came home and had me I'm his son I was born in 1970 last year I came down with MG I called the VA about this no help out of them is there any service men kids who has this I would like to know