retiredat44 Posted August 14, 2010 Share Posted August 14, 2010 Those with ALS, what symptoms did you have at time of VA Diagnosis? I have symptoms of MS, or ALS, , one VA Neurolgist said I have Myotonic Dystrophy... I would really like to kno wmore about the symptoms other people have.. how did it progress? when did you suspct it? was it a surprise or did you see it coming? thanx, (I just recently had a couple c&p exams, and am awaiting the decision..) thanx.. Link to comment Share on other sites More sharing options...
Founder Tbird Posted August 27, 2010 Founder Share Posted August 27, 2010 I hope you find some answers. I'm sorry I don't have any experience with ALS. Those with ALS, what symptoms did you have at time of VA Diagnosis? I have symptoms of MS, or ALS, , one VA Neurolgist said I have Myotonic Dystrophy... I would really like to kno wmore about the symptoms other people have.. how did it progress? when did you suspct it? was it a surprise or did you see it coming? thanx, (I just recently had a couple c&p exams, and am awaiting the decision..) thanx.. Link to comment Share on other sites More sharing options...
HadIt.com Elder Chuck75 Posted September 17, 2010 HadIt.com Elder Share Posted September 17, 2010 I don't either, but this looks like a place to start https://encrypted.google.com/search?q=ALS+symptoms&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a If the links does not work, just Google with the search term ALS symptoms Currently, the VA (& possibly DOD) is on a "kick" about TBI causing "ALS like" symptoms, to avoid the presumptive status of ALS. It's interesting to note that Lou Gerig's profession is one that had a history of head injury, sufficiently so that headgear now in use is far more protective than it was in his day. (fabric baseball cap vs. today's hard helmet) I hope you find some answers. I'm sorry I don't have any experience with ALS. Link to comment Share on other sites More sharing options...
hmcret08 Posted October 31, 2010 Share Posted October 31, 2010 I was diagnosed w/als in nov. 2004. It started with a lump on the back of my dominate hand along with loss of strength and movement. In my case it has progressed slowly over the past 6 yrs. Some major symptoms include but not limited to: muscle cramping & spasums, loss of extremety control/movement, loss of speech, weight loss to name a few. Not all symptoms begin at the same time nor do they effect everyone the same way. For instance, most are confined to wheel chairs due to als effecting their legs however I am quite different in that it has effected my upper body. For more info please visit: The National ALS Assoc. http://www.alsa.org/policy/agencies.cfm?CFID=2899867&CFTOKEN=ef5a4ae638613426-3F50B842-188B-2E62-80E30DFAB579EB96 I really hope this help you. Link to comment Share on other sites More sharing options...
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retiredat44
Those with ALS, what symptoms did you have at time of VA Diagnosis?
I have symptoms of MS, or ALS, , one VA Neurolgist said I have Myotonic Dystrophy...
I would really like to kno wmore about the symptoms other people have..
how did it progress? when did you suspct it?
was it a surprise or did you see it coming?
thanx,
(I just recently had a couple c&p exams, and am awaiting the decision..)
thanx..
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