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Senior Chief Petty Officer
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retiredat44 last won the day on August 8 2014

retiredat44 had the most liked content!

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27 Excellent

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About retiredat44

  • Rank
    E-8 Senior Chief Petty Officer
  • Birthday 04/01/1915

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Profile Information

  • Military Rank
    E-4 SGT
  • Location
  • Interests
    Not able to pursue many interests at this time. My health prevents me from doing much. I wish I could go back to hiking, photography, etc..

Previous Fields

  • Service Connected Disability
  • Branch of Service
    Air Force
  • Hobby
    Combat Flight Simulators. WWII, Modern, and Helos.

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2,799 profile views
  1. I am sorry, I should have not said anything, being just angry forever with the VA, and I meant it as a sarcastic rhetorical comment on a choice that to me is ridiculous. like they give you the choice of a hamster wheel for a lifetime of hell, or the quick easy way of getting a slam dunk approved... like we love to pick and choose the way that destroys what's left of us while we wait and die in hell.... while they just jerk us around while we die... as if we would purposely take the worst possible route to the end....
  2. hell no! I don't want DRC, I want the hamster wheel! give us a break, if they did their job right they would be only one system...
  3. I am not sure if this info is in this forum about how long hospitals must keep records. I found out by accident, while getting copies many years ago forma regular, outside the VA system hospital in California. I had Kaiser health care for a while after I separated from the USAF. This was many years ago. About 3 years after I quite my health plan with Kaiser, I was in the VA system. I wanted / needed copies of my records from all places with my VA records at the VA. I went to Kaiser and they told me that by law, at that Kaiser, in that state, they could destroy medical records after 7 years if the patient/enrollee quite their services. I have no clue if each state or hospital/clinic has different laws. So, I would say to anyone who has records at any place they would like to get copies from, do it before they are destroyed, find out when they are/will/were, or can be destroyed. It would really hurt to need records and find out you missed the opportunity. I have no clue if this info is in these forums for helping those putting together a claim, or adding new evidence. btw, I got mine before the deadline, from Kaiser. Also, I hand delivered some records (official copies to the VA records section.) I asked them to be added to mine.
  4. Questeion and Statement about VA Medical records databases. So, after have treatment in service, several VA clinics, and hospitals. Not counting outside records integrated and added form outside medical clinics and hospitals. So, After 20 years of care at one area clinic and hospital. and filing for disability claims. I complained about them not reading al of my records, even though I always made sure they had copies of any and al medical records. I later transferred to another hospital when I moved. I made ever effort to talk to the hospital and records to make sure the new hospital that will care for me will have al of my records and to make sure al my records went to my VA claims. The assured me they would have access and look up my records. Several times I was assure din person , over phones, at both old and new hospitals and clinics. So, the VA claims did not read, see, or look at al my records. the new hospital did not look at or look for al my records. My records are in at least three separate databases. If the power that be do not look for al three databases, they just see a small part of your records make assumptions that ruin your care, so you do not get the proper care. you claim get bungled because they don't look at all the records and claim they did even with the SSOC's. The poor sick disabled patient is never told they never looked at al the records. they BVA judge, if good, find out the records are not looks in the decisions and continues making Remands in the hamster wheel. The people working on the claim come and go as they skate through with bonuses. As your case continues going up like a huge ball of twine as you get sicker and sicker illnesses add up.. your life goes to hell, you loose family and homes. The sick disabled vet and their family has no idea they never read all your records because it is on 3 different databases and do not connect together. The Vets should not have to even know about databases, should not have to learn and teach the claims people about databases, and find proof if the VA looked at al f them or attempted to look. Those that make decisions are not doctors they could have been painters for al we know while they make life and death medical decision from how they handle your claim. The whole system and the people running it are despicable. The play god with sick vets lives and consider everyone a liar that files. Treat us as criminals. They continue getting fat on the hog. What a disgusting system that need ripped apart and fixed. IMHO]
  5. I am looking at this too.... lots of searching,,, waiting for a biopsy, but not sure if it affects my claim with the bva in 2nd remand... my poa sent them a note to include it into my records while in appeals liver, elevated levels, swollen spleen and ebv disease... along with the necrotizing pancreatitis . Plus many other problems.... may have had elevated levels before, but too many records to search without in a database, all mine is on paper.. wish they had given records on a thumb drive... but va turns out uses 3 separate databases and was no up on technology when my claim started.. this latest elevation has caused the va to see if they can biopsy mine, I hope they can just scan it.. evasive procedures can kill me.
  6. I go for a consult with liver clinic, and as usual, it was to much for the doctor and she has to call in the experts. I had to ask her why she didn't go look at the proper databases that the va uses. Apparently the VA uses 3 medical history databases and shares them with al of the VA hospitals and clinics. A patient should not have to go to a very important medical appointment, only to find out they cannot find al of your records because of data base issues. The patient should not have to travel in a total sate of severe disease and pain, to find out that they have to return because the VA didn't get the information out of the records. And then they sit and ask you to tell them about everything they did and labs, tests, hospitalizations, when the records should have all that. I am not frakkin doctor, I should not have to explain al of everything to the best doctors they have. Now, I will have to go back after they call in the experts they were suppose to be on my case. My time is going to be over, could be soon or sooner.
  7. My POA sent in a letter to the BVA letting them know of a change in my health status and to make sure they get my latest VA health records which show diseases added to the list since the 2nd remand. Thank you for good advice. I appreciate it!
  8. Necrotizing pancreatitis, Portal and Splenic vein thrombosis. neurological disorders, uncontrollable movements. Spent 6 months in a VA hospital bed 2008, year in a wheel chair, learned to walk and eat again after 6 months on feeding tube. Latest 2017, Now add Epstein-Barr virus, more tests show it too, as I knew my immune system is bad. and am too sick often to do much at all.... still have to go to the liver clinic later this month, need a liver biopsy. Spleen is enlarged too. 

    1. Buck52



      I hope they get you well and feeling better  stay in your treatment plan

      I wish you better health buddy.

  9. add Epstein-Barr virus, more tests show it too, as I knew my immune system is bad. and am too sick often to do much at all.... still have to go to the liver clinic later this month, need a biopsy. Spleen is enlarged too. Pancreas still have the necrotizing tissues and cysts... forever as it dies. VA, BVA has my claim on 2nd remand, time is on their side... pain, suffering, agony, and the VA hamster wheel, this is my life, and has been 1/2 of my life.
  10. I asked for hardship in claim forms in the past, didn't help. Right now, I am waiting for the Biopsy date. I should get the results before I can send anything more. Basically the surgeons said all my organs will fail, as it happens with my disease. I was told by a doctor that I am the only person with my disease that has lived this long. So,, as soon as they biopsy me, according to the procedure, I will be admitted, and made to stay there for several hours after they get a piece of the liver that is diseased. Then, I have to be watched overnight too after release home. Last time they put a stent in a vein it failed (that was when I was in the hospital 6 months because of failed procedures). The veins going to my liver have thrombosis, partially blocked by disease, so I have no clue how they can do this without killing me. Apparently they have several methods to get to my liver. oh, by the way, even though I have been going to the VA for 20 years. Was an inpatient for 6 months, now the nurse says I have no directives on file. They lost my directives! I told her I am not filing out that again, how do they lose it, it is in the computer!!!!
  11. I really need for the biopsy to be done, then send the results... it's taking forever to get things done...I think the doctors had to wait for the cat-scam which was done a week ago.... the same cat scans which were suppose to be done 2x year and some idiot changed it to 1x year. o, the symptoms of liver disease I have had for a very long time were ignored until the blood tests results showed levels 10x higher than normal. Plus the VA specialists and surgeons recommendation that normal progression will be multi-organ failure and cancer for my diseases. I knew what was coming next, but they could not tell me how long. it is not happening as what the surgeons told me. It was not a one time meeting. I was in there for 6 months as they diagnosed my diseases and they told me personally 'Prognosis: Poor' almost always multi-organ failure, cancer, and no chance ever of a successful surgery. I need a report showing the biopsy, and don't have a date, so I am stuck until then.
  12. mY condition worsens while at the BVA and 2nd remand. The doctors are running tests to find out what new liver disease I have and good possibility of big problems, as several of my diseases are already fatal. Pancreas, liver, etc. But now they have to continue with more than cat-scans, but now more biopsies, etc. Do I need to send them any new diagnoses while my appeal is at BVA< or will they get the papers from my records while still at the BVA? These new diagnoses and diseases are related to my claims. The VA surgeons as the disease progresses that they will be happening, because of the diseases I have it is natural progression for the other organs getting diseased and cancer probably too, if not yet. As I was told by the doctors and surgeons, in persona many, many times, while hospitalized for 6 months, they told me what to expect with these diseases. And their prognosis is coming true, they just could not get me a good time-frame. Several tests are being done as we speak, and in the coming days and weeks. Should I have my POA fax the BVA any new diagnosises? Just to make sure they are not overlooked. Thanx Steven
  13. The thing (I won't call it a problem) is that if vets get screwed in any way and find out or question whether or not the decision screwed them, and the only way the community will find out is trial by fire. Since a lot of us have been seriously burned over the years and are so jaded and angry... how can we trust anything the va does. Is it to the benefit of vets or the va? (rhetorical)..
  14. update: since the blood tests, that go before the coming cat scan of the pancreas and liver disease, the tests showed low white blood cells, Glucose levels and liver functions and more very bad numbers... doctor says probably hepatitis, a week later I asked that he start helping with appointments to helps me.. my doctor says he will not set up any more appointment until I see him in 2 weeks and have my cat scan in 3 weeks.. but I had more blood tests... should have results in a day or two. I have been sick with horrible symptoms of the problems for along time but they just kept telling me they would not do anything more, now that my blood tests and urine tests who really bad problems along with liver and pancreas disease... he is still making me wait until after the coming appointments.. two weeks is along time when you have fatal diseases... I would have hoped they would get the ball rolling.. I am so sick and fed up, I am like a zombie suffering in agony constantly. I can't sleep well, my muscles twist in agony and half my body is on the floor while I try and sleep because of twisting muscles.. update: more tests show liver disease, doctor finally says sending me to liver specialist. The blisters, purple spots, sores, etc, are from liver disease,, the doctors lied at the va, and c&p doctors lied and said they are normal.. they are form liver disease... https://www.webmd.com/hepatitis/hepatitis-c-skin-problems#1 https://www.webmd.com/hepatitis/hepc-guide/liver-function-test-lft#1 I am so angry and sick of bad doctors at the VA !!! they should no if you have pancreatic disease (necrotizing, that the skin problems too are all connected... they are lying scum that will do anything to screw up your claim at the VA). They should al be fired, sorry for the good ones but the whole place stinks like dead fish.