24 questions in this forum
Hello, I have been (finally) diagnosed with ALS by the VA. Started getting symptoms in 2015, by 2017 I figured out that the VAMC was not interested in diagnosing those symptoms that were progressing, so I had to go to a non-VA specialist. It took 2 years but in 2019 I was diagnosed w/ALS. VA dragged its feet, and finally in 2021 (after almost 6 years) verified the diagnosis. I have learned a lot about ALS in the meanwhile. The PVA rep told me that the VA has been refusing to allow SC for Vets if the diagnosis they presented was less than definite ALS. Seems odd because people with possible and probable ALS die and never progress to the definite diagnosis. Start…0 votes10 answers
ALS Variant? I'm a Vet Wife. I post on behalf of my husband, I'm his note taker at doctor's appointments and consults. I'm his support system and all around cheerleader. Lord knows we have had our VA battles. All these years after Vietnam, the onset of my husband's emerging illnesses, obviously percolating internally has emerged one after another. We've seen subtle signs and some not so subtle. But didn't; know what those sign meant. The VA didn't do a very good job of educating the older veterans about what to be aware of regarding SC disabilities, My veteran husband's a Purple Heart Vietnam Veteran served in US Marine Corps. My husband has several s…0 votes53 answers
I would like to know if you are diagnosed with pls, are you able to get disability under als.0 votes7 answers
VA Secretary Establishes ALS as a Presumptive Compensable Illness September 23, 2008 (Printable Version) Cites Association between Military Service and Later Development of ALS WASHINGTON – Veterans with amyotrophic lateral sclerosis (ALS) may receive badly-needed support for themselves and their families after the Department of Veterans Affairs (VA) announced today that ALS will become a presumptively compensable illness for all veterans with 90 days or more of continuously active service in the military. “Veterans are developing ALS in rates higher than the general population, and it was appropriate to take action,” Secretary of Veterans Affairs Dr. James B…0 votes8 answers
My father has been undergoing testing with several specialists for the past couple of months to try make a determination on what exactly's been happening to him. At this point, many things are pointing to ALS including muscle atrophy, tongue fasciculations, muscle twitching, pain, spinal issues, etc. and he's been deteriorating very rapidly over the past 3 or 4 months. His referral to the Mayo Clinic was just accepted by their team and he'll be traveling there this weekend in hopes that they can make a determination as to what's going on. He was a CWO flying Hueys in the Army for about 8 years then moved on to a different Federal career where he retired a few years ag…0 votes10 answers
Because of my 100% disability from ALS, I was also automatically qualified for the Special Adaptive Housing (SAH) Grant. What type of things can this be used for? I know about ramps and grab bars but with almost $68K there must be much more that would be allowable. Specifically I was hoping to be able to add a screened in porch to the back of the house - that would be a perfect place to rest and relax and forget my personal problems!!0 votes1 answer
Because of my 100% disability because of ALS I was awarded the Special Adaptive Housing (SAH) Grant. What types of things can this be used for? I know about ramps and grab bars but with almost $68K surely there are other things that would work. Specifically I would like a small screened in porch on the back of my house. This would be the perfect place for me to rest and relax and forget about my personal problems. Has anyone here used their grant?0 votes3 answers
http://www.vfwilserviceoffice.com/upload/C%20and%20P%20Bulletin%20May%202012%20Rating%20ALS%20and%20TBI.doc C&P bulletin0 votes0 answers
at my latest Neurologist appontment, the doctor agreed to do further testing.. he said there is a blood test for the Myotonic Dystrophy, but that he needs to have the test specially ordered... Also my records who I have Myoclonic seizures, or at least the doctor sees some proof.. those are the hard jerking moves my limbs do where they can just throw themselves out without warning.. For my appeals I have documents and submitting more for peripheral neropathy.. Just wondering if anyone else takes the drug Clonazepam (I have been given a prescription for it). Thanx..0 votes2 answers
Anyone been diagnoses with MS? I have been going for some C&P exams, and while I was recently diagnosed with Dystrphy, I stil suspect I have MS, and am anxiously awaiting the outcome.. I would like to chat with those that have MS, or suspect they do.. thanx..0 votes25 answers
Very soon, I should know if it is MS I suffer from. In the coming few days or maybe a couple of weeks, I should find out from my neurologist doctor if it is (Multiple sclerosis) MS that I have been suffering from. I had a new MRI of the brain today. I Had a brain mri 30 years ago on active duty, because I was very sick from chemicals on active duty in the U.S.A.F.. I have had all kinds of neurological symtoms, and mostly tremors all these years, but it has been progressing, I have gone through so many symptoms that could be Parkinsons, Myotonic Dystrophy, MS,, and others.. I have had severe muscle wasting, and to go with all theat, have had myclonic seazures, body parts …0 votes0 answers
Well today is d-day. I am going to see my priviate doc to see if i have ALS or MS he is a speciallist. The question i have is if i am dx with als will i keep my rating that i have now or add to it. I will let you guys know what happen when i get back0 votes1 answer
We closed the notice for request 1. VA message states Closed the for Request 1 or 2 or some #. What does it mean?
It is a status message that doesn't tell you where your claim is in the process.
Question Posed: So my appeal was closed on July 15. I haven’t received my letter yet, but under the issues tab on va.gov, where it used to say the items I was appealing, it now says “compensation issue.” Is that normally what it says just when they close the review? Has anyone seen any other terminology in that section?
Compensation issue simply means your claim is for disability compensation as opposed to some other kind of claim Maybe an upgrade for discharge for example. Most claims that are submitted are designated compensation issues. Nothing to worry about.
Create your blog.
Sometimes you have more to say that doesn't fit a community discussion. Maybe you are passionate about fishing, cooking, reading, it's your choice. The same guidelines apply to the blogs that apply to the community. The two biggest are no politics and no religion. Facebook or someplace else is the place for that, it is not here. Creating your blog allows you to expand on what you have to say.
Do you find yourself typing the same content again and again?
Create a blog post with that content and then all you have to do is link to the blog post.
This gives you two main advantages
You only have to type the content once, a great time saver.
If your content changes due to law or regulations or for whatever reason, you only have to update your blog, and wherever you link to that post will be linking to the most current information.
Check out the video below.
Have questions? Ask it in this topic and I will do my best to answer.
Tbird posted an answer to a question,Further Reading from VA.gov
How do I upload evidence online to support my disability claim?
If you’ve filed a claim for disability compensation, you can continue uploading more evidence for up to one year to support your claim. Evidence may include supporting documents like medical test results, doctor’s reports, and other records. Upload your evidence online now.
If you’re waiting for a decision on your disability claim, you can upload evidence to support that claim using our claim status tool.
Upload evidence using our claim status tool
Note: For any other type of document you’d like to submit online to us, please use the QuickSubmit tool through AccessVA.
If I filed a standard disability claim, when should I upload evidence?
Upload your evidence as soon as you can.
You can continue uploading documents for up to 1 year from the date we receive your claim. But, if you don’t provide any evidence or give us the information we need to help you get evidence within 30 days, we may make a decision on your claim earlier.
If we decide your claim early, you’ll still have the rest of the 1-year period to provide more information or evidence.
What happens if I upload more evidence after I’ve submitted a fully developed claim?
We’ll remove your disability claim from the Fully Developed Claims program and process it as a standard claim.
If we decide your claim earlier than 1 year from the date we received the claim, you’ll still have the rest of the year to provide any additional information or evidence.