Jump to content
Using an Ad Blocker? Consider adding HadIt.com as an exception. Hadit.com is funded through advertising, ad free memberships, contributions and out of pocket. ×

Question - does the VA have un iform standards at clinics


This thread is over 365 days old and has been closed.

Please post your question as a New Topic by clicking this link and choosing which forum to post in.

For almost everything you are going to want to post in VA Claims Research.

If this is your first time posting. Take a moment and read our Guidelines. It will inform you of what is and isn't acceptable and tips on getting your questions answered. 

 

Remember, everyone who comes here is a volunteer. At one point, they went to the forums looking for information. They liked it here and decided to stay and help other veterans. They share their personal experience, providing links to the law and reference materials and support because working on your claim can be exhausting and beyond frustrating. 

 

This thread may still provide value to you and is worth at least skimming through the responses to see if any of them answer your question. Knowledge Is Power, and there is a lot of knowledge in older threads.

 

 

Recommended Posts

I have run into this new issue and feel that my VA system in Alabama is using a different set of procedures compared to others.

I am 70% rated,on oxygen and CPAP so all medical is covered.   After 3 months of struggle I finally got a CPAP machine from the VA - but it was a struggle.

We lost power here after some severe storms and it was off for 2.5 days (2 nights).  I ran out of oxygen battery from my portable in 7 hours but OK.  However, I could not use the CPAP and I had a really rough 2 nights.  My friend is in NY and on CPAP as well.  He asked about camping and his VA sent him a battery unit for his Philips Dream Station like mine and a 12 car adapter  ... very nice stuff.  He is rated 10% but not for sleep apnea so I's not sure how all that works.

I asked my sleep clinic in Montgomery if the had the battery unit OR (important OR) a 12v car adapter and I could make my own OR if they had a bad power unit so I could just get the plug on the end and make my own.

I got what I thought was a pretty arrogant reply - "The VA does no supply any battery backup for CPAP but you can purchase your own on the Internet" - well no shit!  I thought that was a horribly attitude and no mention or the OR possibilities.

So my question is if the VA has uniform policy or did my friend just get very lucky?  It seems that all of the VA clinics should offer the same supplies uniformly.

Does anyone have experience with this?  Thanks very much for the input.

Link to comment
Share on other sites

  • Replies 10
  • Created
  • Last Reply

Top Posters In This Topic

There is absolutely no uniformity or standards at VA or the VAMC. I would say that your friend got very lucky. What one veteran get granted or approved for at one VA or VAMC may not at another.  I was informed with the same answer when lightning fried my Cpap machine and it quit working all together.  I was given a new Cpap machine and was informed to buy a power surge plug.

Link to comment
Share on other sites

  • Moderator

Rexlan There are somethings that are consistent and then there are some that , well, not so much. This is what I would do: I would send a secure message to your primary doc. Tell him pretty much what happened. Ask him if he could intervene. And, here's the kicker, tell him because of those couple days without a working CPAP, tell him you aren't feeling well and request ANOTHER sleep study! The VA doesn't like spending $ on medical procedures especially if they are earlier than they should be scheduled. I don't know if you have any MH disabilities, like depression or anxiety, but tell him you are Really nervous about the situation happening again. My guess is you will get some action.

Link to comment
Share on other sites

As usual great information and replies -- thanks very much!!

My stuff is Viet Nam PTSD (1965)  .. I let it go close to 50 years and only applied last August.  Funny thing is I didn't want the $$ just the health care we were promised back in the day -- totally rethinking that now. 

Link to comment
Share on other sites

  • Moderator

Rexlan If you are a Vietnam veteran and kinda new to this, take a look at the listing of presumptive diseases for AO here  https://www.publichealth.va.gov/exposures/agentorange/conditions/index.asp  Hopefully you are healthy and none of this applies to you. but this listing has expanded quite a bit over the last 10 years or so. Don't forget that if you have any of these conditions, they often result in SECONDARY conditions that can also be disabilities. For example, type II diabetes often leads to hbp and eye problems tthat on the surface most people wouldn't connect. Keep on reading and learning on Hadit and ask questions when you need to.

Link to comment
Share on other sites

SSA and VA disability compensations were set up to help individuals that would become disabled or to assist them later on in life to maintain an average or standard of living.  When I was in the military like most to all, I was not thinking about disability or have to quit work at a younger age. My plan was to retire. When I got hurt I continued on but when I got sick and couldn't recover, my first thoughts were, what the heck are you going to do now. Even when I was discharged, I was not thinking or knowing anything about disability. It wasn't until one of my VA doctor's telling me that I had to quit work just to have a more better life due to chronic pain that could only be treated but never be cured.  I went to school thinking I could beat this thing but my condition(s) only got worst to the point where I had to realized that I couldn't  ever go back to work. I had to realized that these programs were set up for individuals like me. After helping a friend get granted 100% TDIU, I encouraged him to file for SSDI but he refused and decided to wait for his retirement age of 65. Yes, my friend was not even 50 years old.  Yes, I knew that there was no guarantee that he would be granted SSDI but it was most likely would get it.   My thoughts were, since he was  already awarded 100% TDIU and it was not likely that he would ever go back to work and would never accrue any more work credits then why not get his SS benefits compared to waiting for them. He still refused to file a claim but that was/is on him.  We never know what will happen and in this day in age where people are losing their jobs and running out of basic supplies. If you qualify for benefits, apply now and let these benefits help you and your family. These benefits are earned through our sacrifice and our commitment to our country and are in no way the same as welfare. Some veterans feel that SSA and VA are welfare and they of course are not.

 

Link to comment
Share on other sites

  • Moderator

VA has exactly the same policy at each VA: 

Quote

Its called "willy nilly" where one person says one thing, someone else will tell you the exact opposite.  You can count on that being fully implemented at each VAMC except in cases where the VA "has no idea" what they are doing.  (Which is 90 percent of the time).  

Case in point.  My VA not only sent me a CPAP battery backup, they sent me 2 of them, yet they told you VA doesnt supply them.  My advice is to talk to someone else, they surely will have a different opinion on it, unless they have no idea what they are doing.  

Edited by broncovet
Link to comment
Share on other sites

  • Moderator

I had some problems with my VA iSSUED C-PAP  And went to the VA Sleep Clinic to let them know , I am not sure what it was  but I kept waking up during the night  and from what me and my spouse could tell the c=pap was not putting out enough pressure.

   so we tried to turn it up  but nothing helped we clean it good and replace all filters and I was still having breathing problems   so I took it in to the VA Sleep Clinic let them know what all we did to it to try and get it to do what it is supposed to do  so I can get some much needed sleep safely,

   and they were very rude and said you need to leave the damn thing alone  do not make any adjustments  to this machine,  it was adjusted to your sleep apneas  to a certain setting 'pressure, now you messing with the adjustment you got it all out of adjustment, I ask if they can readjust it  and they said I will need another sleep study  and it looks like that is about 6 months out...grrrrr

I was pissed off by this time and went straight to my hospital director  he is the boss over all the Dr's and employees there  and he called the sleep clinic and had them to issue me a new c-pap machine and use the settings from my last sleep study..they got me a new C-pap  and Its working good now...some times we just need to get in touch with the right person  in my case it was the Hospital Director  he helps all us Veterans...and he does not like the clinic clerks to talk down to any veteran...he says we are the reason they all have jobs  including himself.

Link to comment
Share on other sites

22 hours ago, broncovet said:

VA has exactly the same policy at each VA: 

Case in point.  My VA not only sent me a CPAP battery backup, they sent me 2 of them, yet they told you VA doesn't supply them.  My advice is to talk to someone else, they surely will have a different opinion on it, unless they have no idea what they are doing.  

Thanks for this reply.  I know the advocate I've dealt with has not been helpful and my primary Dr. is worthless and I have consequently pissed her off probably.  The CPAP clinic has been terrible.

But I will reach out to the advocate again on this issue and see/report what happens.

 

 

Link to comment
Share on other sites

  • Moderator

I FIND THE VA ADVOCATES ARE WORTHLESS  TO GET ANYTHING GOING WITH THE VA SYSTEM   Hospital Director is your best bet.

BUT YOU DO WHAT YOU THINK IS BEST.

Link to comment
Share on other sites

Buck52

It sounds like your sleep clinic is as bad as mine.  There is NO POSSIBLE WAY for you to screw up the machine.  Change settings = yes, but easy to adjust.  As I said in my other thread, 99% of the titration sleep studies are WRONG.  Strange bed, environment and you will never have a normal sleep.  It is quite marginal with an at home study too.  Almost always the machine pressures are set too high and this causes mask leaks and awakenings.

They set mine at 5 to 15 and I could not sleep at all.  Started tweaking it and found my sweet spot to be 5 to 7.5.  My AHI now averages about 1.8 and has been great for almost a year.

Unless you have a really severe blockage more pressure is not necessarily the answer.  You can tweak it and only change it 1 Cm at a time, test 2 nights, until you find what works for you on pressures.  The flex setting that reduces pressure during exhale is also important and mine is set a 2. (1-3 is available)

Also you need to look at the Sleepyhead software and download your sim card.  Then you can see EXACTLY what is going on, when you have an apnea and if it is a central, obstructive or hypopnea.  You will also be able to see the machine automatic pressure adjustments while you sleep, arousal when you wake up, etc.

Fort me, the arousal right before I wake is associated with a high pressure then a mask leak as a result ... lower pressure for me get back a shallow and calm breathing pattern and I sleep great.

Edited by rexlan
Link to comment
Share on other sites



  • veterans-crisis-line.jpg
    The Veterans Crisis Line can help even if you’re not enrolled in VA benefits or health care.

    CHAT NOW

  • question-001.jpeg

    Have Questions? Get Answers.

    Tips on posting on the forums.

    1. Post a clear title like ‘Need help preparing PTSD claim’ or “VA med center won’t schedule my surgery instead of ‘I have a question.
       
    2. Knowledgeable people who don’t have time to read all posts may skip yours if your need isn’t clear in the title.
      I don’t read all posts every login and will gravitate towards those I have more info on.
       
    3. Use paragraphs instead of one massive, rambling introduction or story.
       
      Again – You want to make it easy for others to help. If your question is buried in a monster paragraph, there are fewer who will investigate to dig it out.
     
    Leading too:

    exclamation-point.pngPost straightforward questions and then post background information.
     
    Examples:
     
    • Question A. I was previously denied for apnea – Should I refile a claim?
      • Adding Background information in your post will help members understand what information you are looking for so they can assist you in finding it.
    Rephrase the question: I was diagnosed with apnea in service and received a CPAP machine, but the claim was denied in 2008. Should I refile?
     
    • Question B. I may have PTSD- how can I be sure?
      • See how the details below give us a better understanding of what you’re claiming.
    Rephrase the question: I was involved in a traumatic incident on base in 1974 and have had nightmares ever since, but I did not go to mental health while enlisted. How can I get help?
     
    This gives members a starting point to ask clarifying questions like “Can you post the Reasons for Denial of your claim?”
     
    Note:
     
    • Your first posts on the board may be delayed before they appear as they are reviewed. This process does not take long.
    • Your first posts on the board may be delayed before they appear as they are reviewed. The review requirement will usually be removed by the 6th post. However, we reserve the right to keep anyone on moderator preview.
    • This process allows us to remove spam and other junk posts before hitting the board. We want to keep the focus on VA Claims, and this helps us do that.
  • Most Common VA Disabilities Claimed for Compensation:   

    tinnitus-005.pngptsd-005.pnglumbosacral-005.pngscars-005.pnglimitation-flexion-knee-005.pngdiabetes-005.pnglimitation-motion-ankle-005.pngparalysis-005.pngdegenerative-arthitis-spine-005.pngtbi-traumatic-brain-injury-005.png

  • VA Watchdog

  • Can a 100 percent Disabled Veteran Work and Earn an Income?

    employment 2.jpeg

    You’ve just been rated 100% disabled by the Veterans Affairs. After the excitement of finally having the rating you deserve wears off, you start asking questions. One of the first questions that you might ask is this: It’s a legitimate question – rare is the Veteran that finds themselves sitting on the couch eating bon-bons … Continue reading

×
×
  • Create New...

Important Information

{terms] and Guidelines