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I'm So Poooed Right Now

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jessie0054

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jessie0054 Proficient

jessie0054

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Hello:

I am so mad right now i'm shaking!!

My son has a bone marrow disorder called Polycythemia Vera.

Fot the last almost 6 years he has been followed by an Oncologist and had Phelbotomies done regularly when his HCT levels are at 45 or higher and had been told by the Oncologist not to let the HCT get any higher than 45 and best to keep it at the hightest 42 to prevent Heart attact or stroke.

Recently he moved to South Carloina and has no Oncologist set up, Today he went to one of those VA Clinics in a mall and had blood test done because he is having symtomps of the disorder again such as fainting and dizziness, confusion and shortness of breath. His HCT is 52 right now.

The Clinic refused him a phelbotomy because by their standards his HCT is qoute " Not High"

Maybe not by their standards!! But with someone with this disorder it is very high. Do they even have doctors in these clinics??

He was also having a great deal of pain with his back and they told him they couldn't do a MRI because he has metal rods and screws.

Anyone else have a problem with these clinics??

Jessie

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Pete53 Grand Master

Pete53

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Jessie:

I will pray that your son is treated and that he gets the care he deserves.

Insurance and Hospitals are just like the VA appeal anything that is not right.

Veterans deserve real choice for their health care.

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jessie0054 Proficient

jessie0054

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Jessie:

I will pray that your son is treated and that he gets the care he deserves.

Insurance and Hospitals are just like the VA appeal anything that is not right.

Pete53

Thank you for the prayers!!!

Is there not somebody that i can complain to right now??

Jessie

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LarryJ Grand Master

LarryJ

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Darlin,

Those storefront VA clinics are an "extension" of the VA Medical Center that serves the area where the clinic happens to be located.

Get hold of the Patient Advocate's office in the nearest VA Medical Center.

"It is cold and we have no blankets.

The little children are freezing to death.

My people, some of them, have run away to the hills, and have no blankets, no food; no one knows where they are-perhaps freezing to death.

I want to have time to look for my children and see how many of them I can find.

Maybe I shall find them among the dead.

Hear me, my chiefs! I am tired; my heart is sick and sad.

From where the sun now stands, I will fight no more forever."

Chief Joseph

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jessie0054 Proficient

jessie0054

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Darlin,

Those storefront VA clinics are an "extension" of the VA Medical Center that serves the area where the clinic happens to be located.

Get hold of the Patient Advocate's office in the nearest VA Medical Center.

Larry,

Thanks i'll do that!!

I have also called his Service Officer to see if he can get anywhere!! I'm waiting for a call back from him.

Jessie

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Jesse,

Don't hold your breath for the service officer. But for sure get a hold of the patient advocate at the nearest VAMC. The patient advocate will be able to get the needed test ordered or at least get your son an appointment with a doctor at the VAMC. You might have to drive but at least he will be seen, even if it is as an urgent care appt. at the VAMC ,as a walk in.

When we had a problem at the VAMC the patient advocate was able to get an appt. for the next day. My husband has waited five months to get an appt. at the VA Clinic near to where we moved. We wanted to establish care at the clinic that is within 2 miles of our house. But it has taken five months for an appt. So in the event of emergency he has to go to the VAMC which is an hour drive. We have two VAMCs to choose from but it is still a drive.

Jangrin

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jessie0054 Proficient

jessie0054

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Jesse,

Don't hold your breath for the service officer. But for sure get a hold of the patient advocate at the nearest VAMC. The patient advocate will be able to get the needed test ordered or at least get your son an appointment with a doctor at the VAMC. You might have to drive but at least he will be seen, even if it is as an urgent care appt. at the VAMC ,as a walk in.

When we had a problem at the VAMC the patient advocate was able to get an appt. for the next day. My husband has waited five months to get an appt. at the VA Clinic near to where we moved. We wanted to establish care at the clinic that is within 2 miles of our house. But it has taken five months for an appt. So in the event of emergency he has to go to the VAMC which is an hour drive. We have two VAMCs to choose from but it is still a drive.

Jangrin

Jangrin:

Thanks, I called my son back and told him to call the Pt. Advocate at the VA in Charleston, SC He's doing that now.

You may be right about the service Officer, I still haven't heard from him, So i'm not holding my breath.

Will let you know what we find out.

Jessie

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