retiredat44

I have been taking Morphine for many, many years,, I was in the hospital for 6 months and had Dilauded by both injection and had a pump too... when I was doing slightly better with pain I was back to a morphine pump... I have necratizing pancreatitis.. I had many complications... sorry about mispells,, damn hands shake..

Anyone been diagnoses with MS? I have been going for some C&P exams, and while I was recently diagnosed with Dystrphy, I stil suspect I have MS, and am anxiously awaiting the outcome.. I would like to chat with those that have MS, or suspect they do.. thanx..

morphine and dilauded do not help with headaches.. in case anyone is wondering.. it's for a lot of other types of pain,, not all pain are the same nor can they be treated the same way.. IMHO through lot's of experience

As soon as I walked in a sat down, the doctor said how are you, I said I wish I was still at home in bed. Being sick I wasn't lying.. he looked and said 'so do I' sarcastically.. I knew then he had not read my records and thought I was there to scam them.. he also said how am I doing. I said I am a mess.. he says, I can't write that down.. and I said I know you can't ... I don't even know where to start.. I bet he feld like an ass when he found out how bad in condition I am.. if/when he does read my records he will need a week to just scan them,, and use a computer to search key words, he will need a doctor while banging his head on the wall.. it's an assembly line.. they have the instructions and we are the cattle, being moved in one end and out the other.. you can't rehearse... you don't have a copy of the rules.. and if you are sick and in pain, the last thing you want to do it play games.. best thing to do is tell them you are sick, are in pain, don't feel well.. let them run whatever tests they have.. a problem with tests is that some days you feel better than other days,, nothing you can do,, you have no clue how well the test is going.. I used to break down weeping, especially while in the hospital, but I cannot cry at any time. my stupid body breaks down at a time of it's own choosing. I wish I was more voacal, I find it very hard to talk and explain things when I I am having a bad day... (or worse day..) I know they cannot read my mind, but I just can't seem to get my thoughts out and coherently when I am having a really bad day.. well, stumbing around when being told to walk on toes, walk on your heels, and falling over while shaking uncontrollably.. him asking how long have I had these problems, and telling him for 30 years.. and telling him I was treated for tremors while in the service on active duty and I think he already knew I was rated at 50% for chemical exposure.. I hope he already knew that.. I worked with Jet fuel and got very sick sick..)

anger can make you sick.. don't ruin a good body, once it's ruined, you are stuck with it forever.. IMHO

While inht he hospital for 6 months I had a diluaded pump. because the nurses had to give me a shot every hour.. and I tgot to control my intake, (of course it is programmed so I could not go beyond the programming.. I then went bavck to a morphine pump as the diluaded is probably the closest thing available to the best pain relief short of death or coma.. but it also can make you feel totally wacked out of your mind.. and not needed if the regualr morphine does the job.. I went back to immediate and long term relief morphine went I got out, (I have been taking morphine for 10 years, and before then everything else.. I hurt all over. and during a pancreas attack the morphine does not help as much I would hope.. My whole bady is wretched in pain,, many years ago I was tagged with Fibromylgia.. but al my musclles hurt, my back riddled in disease and the intestines and pancrease diseased.. for many, many years, all food and drink made me very sick and in severe pain.. I tried telling doctors about the food and drink making me sick and I was treated like I had some nutjob disease where you hate food.. I love food.. it made me very sick though.. I had lost the ability to eat and drink.. my intestine shut down, I was tube fed.. for 6 months.. I lost 60 lbs, and I wasn't fat.. and am about 5'9".I lost the ability to walk and shake badly.. I lost the ability to taste and smell.. I got the ability to eat, drink and taste food, and can walk again too I went to the mental health doctors to gain some sanity back.. When I went to that C&P for Neuro the other day, the docotr had no clue.. my guess is either they think everyone is out to scam them, or he never bothered to read my files.. he must have been shcoked (not only when he asked me to walk around on my toes,, when I fell.. and shook all over.. but when / if he opened my files he probably freaked out when he saw the truckloads of of medical records.. I have some of my records and they take up a couple file cabinets, and that isn't al of them.. my illness has been raging since the 1980's. I find it crazy and inulting for a doctor to ask me to come in, sit down, and they haven't even read any of my medical history and ask how I am doing. as if I am going to say great, I am here to dance.. crazy world... heartless, cruel, insane uncaring indifferent, uncaring, no clue.. I suspect if some of these doctors had to deal with only a smal part of what I have bene through they would have killed themselves..

I would like to chat with some people who have Diabetes.. I would like to compare my expereinces with illenss .. I have some questions about some of my symptoms:unsure: thanx..

I have been suffering a very long time with tremors, and involuntary movements.. I finally got a diagnosis of Myotonic Dystrophy (like Muscular Dystrophy) a couple of years ago. I just went for a C&P exam and the neurologist docto was eamining me.. I wasn't real happy with the Myotonic Dystrophy diagnosis (I was happy to get a decent diagnosis.. don't get me wrong..) but, also I have a lot of symptoms that seem to be consistant with other diseases like MS and Amyotrophic lateral sclerosis. I would like to know if anyone else has any of these disease here in these forums.. I would like ot compare the sysmptoms.. thanx..

I had a C&P exam today, I have another exam next week.. I left a note in the C&P Forum section.. note: the VA Mission Valley office (San Diego) (not the building) really sucked bad,..

I too have been taking pain meds for 20 years... I settled on Morphine... Methadone had some side affects which made it a little worse as far as side effects,, the running nose problem... and dryness.. too.. I have had all pain meds.. I have had morphine pump... many years ago, I had the oxycontin, and the government treats people with chronic pain like criminals.. it's disgusting how they can treat chron pain sufferers like $hit... the doctors were running scared... suicide was the only other choice for people in severe pain.. our government really sucked bad for treating sick people like criminals..

I went to my Neuro C&P, (Neurology). It sucked.. I went to the VA Mission Vally office.. I got here one hour early. Went through the armed Xrays to enter.. went upstairs, I went into one line , I wanted to ask about getting another copy of some service records.. I stood in line,, I was the only person in that line... I stood there for 20 minutes suffering in pain.. they looked at me.. but never asked me to move to the counter, just blew me off ,, I moved to another line to another desk for the medical appoinemnt exams, and cheked in,, I went back to the first line.. then there were five people in front of me. I waited and waited, in agony.. I asked them if I could fil out paperwork in the Mission Valley office for service records.. ( must have given out my last copy to my VSO, and I want some new copies..) They told em to fil out a form,, but told me to go to table, even though I onlyu had to sign in and write my SS#. I said fine, so, I went to a table, and was shaking so bad in pain I could not write legibly.. they never even asked to help.. when I signed my named I had to get back in line behind five people again.. I was finally at the front and I stood there for five minutes to hand them the paper I signed.. They said something and I moved forward. they they ignored me and I asked if they called me, they refused to answer.. I went back to the red line.. a few minutes later they waved me forward.. They really really eed an attitude adjustment, they are so damned rude! I saw the doctor for my neuro, and this doctor acted like I was a liar, someone who was there trying to steal something.. He said I looked fine to him sitting in the chair.. and I said if he would exam me he would find I had problems.. He said why do you need a cane if you only had back surgery.. why would I need a cane if I had pancreas surgery, (implying I did not need a cane..) until he gave me some tests,,, as I shook and trembled, and several times I fell over and grabbed the desk after he made me put my cane down and told me to walk around the room. I told him about having to spend one year in a wheel chair and not able to walk.. I have to say I was humilatied, insulted, treated badly.. and treated like I was a criminal.. The VA Mission valley office is miserable.. All of the other VA clinics and the hospital are pleasant, and very, very nice people, great atmosphere, friendly.. There was a few nice people, but not may... One clerk that I went to to get the acess paperwok for the VA myhealthnet website was good to me.. and a few others.. But, event he gaurds at the front of the building that man the xray and search were less than nice, it wa slike the DMV.. it was like everyone was bad and had to be put in the place before they could enter.. I wass trying to look at the glass display cases with items on display from several wars, all of a sudden I hear gurads voices telling me I had to move to the other side of the room because that was not an exit.. They really have a god complex in their guard uniforms.. the main VA and the othe rclinics would never treat anyone as badly as they are at this Clinic.. I have never gone to a website to say bad things about any VA clinic before but this place really sucked.. I stil have one more C&P exam ther next week.. I probably should not even say anything here, esecially while my claim is in appeal.. as while I go through this process they might retaliate and deny me just because I said this stuff, but I was sick, and treated badly.. the droids at the Benefits help desk were so rude, indiffrent, and had such a crappy attitude... we are like cattle being moved through with a cattle prod.. anyone else ever visit there? feel free to let me know.. how they feel about this clinic..

when I am logged on I neve rhere a beep or anything and if I am not looking, I don't know anyone is in it,,, and people don't stay, if they dont see anyone they leave.. I stil think voice is better.. IMHO:tongue:

I want to say upfront, that this is only my opinion from experiences for false postive test results.. First of all, it hits you hard if you are told you have soemthing like HIV, when you do not have it.. I understand you were told that your might have been exposed.. I was actually told I had HIV, and I have had several, at least 4 HIV tests over the last few years at the VA. (They repeated the tests a few times and determined I was negative). I also had other tests that were false postive, and others tests showed positive that were positive.. I also had tests for lung disease (positive) which turned out negative after months of testing.. (yes months of daily tests..). But still had to have water drained form the area around my lungs, but those spots in my lungs turned out the xray machine was wrong (after weeks of daily tests..) What am I getting at..: The procedure for cleaning may not have been as good as they should have been, but chances are low.. and since all these months have gone by,, it is highly unlikely you have contracted AIDs. I vagely remember the doctors telling me that the testing would show it with a definte yes/no after a few weeks.. I have blood transfusions, I had several blood viruses and went through blood transfusions.. for several nights in a row I had the blood transfusions, I had to sign documents stating that I understood that the blood screening process tries to catch contaminated blood. now that's scary especially when you are laying in a bed dying.. Again, you are probably in the clear, as all these months of testing. and the VA labs are as good as any.. in fact probably some of the best, with all these inspections and scrutiny, they are probably safer than than many other labs.. I don't know you are anything you have been through.. I can only relate through personal experiences.. One sign of HIV is having yellow skin and yellow eyes.. Hepatitis. as long as you don't see that or start feeling ill.. you are ok.. btw, I had al my teeth removed 10 years ago, the intestinal disease melted my teeth away, and they were like shards of glass cutting through my mouth. They cut through my tongue, through my lips.. and had jagged sharp edges.. The VA refused to help. I had to go to a dental school and payu for them to removed the melted teeth.. They refused to even listen to my pleas.. The dental school (Loma Linda) took one look and said they all have to be removed.. MInd you , I had to drive at least 100 miles in each direction to go back and forth.. all the while taking methadone for pain.. IMHO If you have any good days, feel good in any way, enjoy the good days... take advantage of any and all good days..

MY VSO was advising me, that if I add more claims it wil slow down the claims I already have in the works.. it's a really hard decision.. because you have to live witht he decisions you make.. if there are timne limits consider that. if there are no time limits.. if you can deal with your claim being slowed down, if at all, by adding more claims... this really is wrong to have to try to outwit and out think the claim proces,s especially if you cognitive functions are impaired,, mine are defintiely impaired form illness, medicines, and the lack of legal training in these matters...

I thought I had MS, but the doctors said I have Dystrophy.. but at least I got a diagnosis of why my body is a mess..

Update: My VSO called me and is going to setup a meeting for this too.. to see where to go from here.. note: I already have an appeal and NOD pending, so this might really slow things down if I sned in more.. but I don't want to possibly miss out on soemthing important. so I will see soon, how it goes adding more claims.. This week and next I have some Comp and Pen exam appointments.. I don't want to confuse anyone.. I was in the hospital bed in a hospital for 6 months.. but I also have a hospital bed at home... and the VA gave it to me with a two home nurses when I left the hospital (they would help with nutrition and physical therapy.., hwish was for about 2 months..) I needed the head and feet raised because the swelling was so bad in my leggs and the intestines (pancreas) were in such bad shape, my head could not lay down flat.. also my back makes it hard to get out of bed whenit's flat.. I had to roll out of bed.. you are so right! They never ever tell you anything.. you have tpo either stumble on info, search for info... or get lucky.. and usually when you find something out, it turns out, you got the big shaft..

I have had severe adema in my legs with huge amount of swelling, expecially 2008. I took lots of diuretic to remove lots of water... I take some Furosemide often.. The swelling isn't real bad now.. but the burning is increasing.. feels like my legs are sunburned.. Peripheral Artery Disease must be getting worse... (though they never said I have PAD, I do have Thrombosis of some veins in my liver.. I am sick of telling the doctors about problems.. as I finally got a couple months of rest on not being at the hosptial constantly.. I do not have diabetes.. but do have necratizing pancreatitis. note: I never had contact with agent orange (that I know of..) as I was never in Vietnam..

It was in a hospital that i was in a hospital bed.... and my claim was filed within 1 year.. I was in the bed 2008 and filed for my claim in 2009.. this is the claim I am now that I am in the appeal/nod process with.. too complicated.. when I say I was in a hopital bed, I mean in a hospital bed.. anyways I hope that I willspeaking with my VSO this week, I faxed my my letter last week about this matter.. I have 2 Comp and pen exams coming, this wed, and next friday..

no... I left the USAF after 5 years.. as I got sick on the job.. they screwed up, and sent me to another job that the doctors old them I was unable to do because I was sick, needless to say I got very sick all over again.. so I was discharged.. but they never gave me a medical disharge.. (This is the short version..)

you really need to ask doctors these questions.. IMHO

I wrote a letter and sent it to my VSO, so they can look and help me work on this... they can help with forms and help me submit them.. my Veteran's Service Officer will get it this morning.. and I will talk with him in the coming days... thanx all..

how do you collect?

what does this mean: ?? •Temporary total evaluation (100%) based on hospitalization for a service connected disability in excess of 21 days; or surgical treatment for a service connected disability necessitating at least 1 month of convalescence or immobilization by cast, without surgery of more major joints. === example,, I spent six months in a hospital bed, does that mean I am entitled to 100% disability pay for that 6 months? ------ note: I am currently only rated at 50%, and my claim I have going I am trying t get the increase to full 100% permanent.. thanx..

oh, and btw, I had a pre-existing condition which they gave me a waiver for when I joined,, I had cataracts, but they were not growing at the time, and were dormant.. I recently had one removed... I stil have one in my other eye...

Al lthe time and very very often, my BP is bad, wrong, etc.. and the nurses always make me sit down and rest, then they take it again, and again, until they get the reading they need.. I though they did this with everyone that has a bad reading.. I have no idea if they write down each test in my records, or just the 2nd test..